Incorporating the Principles of Self-Management into Treatment of Dysarthria Associated with Parkinson's Disease.
Incorporating the Principles of Self-Management into Treatment of Dysarthria Associated with Parkinson's Disease.
复制标题
将自我管理原则纳入帕金森病相关构音障碍的治疗中。
DOI：
10.1055/s-0037-1602840
复制
发表时间：
2017
影响因子：
1
通讯作者：
Britton,Deanna
中科院分区：
文献类型：
--
作者：
Yorkston,Kathryn;Baylor,Carolyn;Britton,Deanna
虽然了解患者的治疗观点是以患者为中心的护理的一个主要组成部分，但对帕金森病（PD）构音障碍治疗相关的患者观点知之甚少。本文试图通过对帕金森病相关构音障碍患者治疗前后的访谈，探讨他们的观点。治疗的期望和经验进行了总结沿着，讨论了患者如何使用他们在治疗完成后学到的工具。关于治疗的评论通常是积极的，并建议提高意识和改善言语响度。然而，还确定了需要改进的领域，包括：（1）治疗没有解决患者关心的一些沟通问题;（2）治疗计划不愉快;（3）治疗结束后难以保持收益。自我管理的原则进行审查，以解决目前的治疗方法的一些缺点。
Although understanding patient perspectives on treatment is a major component of patient-centered care, little is known about patient perspectives related to dysarthria treatment in Parkinson's disease (PD). This article attempts to explore the perspective of patients with dysarthria associated with PD by interviewing them before and after treatment. Treatment expectations and experiences are summarized along with a discussion of how patients are using the tools they learned once treatment was completed. Comments about treatment were generally positive and suggested increased awareness and improved speech loudness. However, areas for improvement were also identified including: (1) treatment was not addressing some communication problems that were of concern to patients; (2) therapy programs were not enjoyable; and (3) it was difficult to maintain gains after therapy ended. Principles of self-management are reviewed to address some of the shortcomings of current treatment approaches.