Differential impacts of care-giving across three caregiver groups in Canada: end-of-life care, long-term care and short-term care.

Differential impacts of care-giving across three caregiver groups in Canada: end-of-life care, long-term care and short-term care.
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DOI:
10.1111/hsc.12075
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发表时间:
2014-03
影响因子:
2.4
通讯作者:
Kitchen P
Kitchen P
中科院分区:
医学4区
文献类型:
--
作者:
Williams AM;Wang L;Kitchen P

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使用来自的数据,本研究探讨了在照顾者或接受者的家中或在社区其他地方提供非正式护理的三组照顾者之间是否存在护理影响的差异:(1)提供临终关怀的人(n=471);(2)为患有慢性病或长期疾病的人提供长期护理(2年以上)的人(n=2722);以及(3)为患有慢性病或长期疾病的人提供短期护理(不到2年)的人(n=2 381)。这项研究展示了三个照顾者群体的社会人口学特征的差异,同时也建立在我们通过分析决定因素来理解护理的不同影响的基础上。所有这三组照顾者都有许多社会人口特征,包括女性、已婚、就业和生活在人口普查大都会地区(CMA)。在健康方面,研究发现,EOL照顾者的自我健康评估水平明显高于其他两组。总体而言,研究结果表明,EOL照顾者受到往往额外的护理作用的负面影响,比短期和长期照顾者都更严重。EOL照顾者对其社交和活动模式的负面影响比例更高。此外,与其他两类非正式照顾者相比,EOL照顾者产生的经济成本更高。与其他照顾者群体相比,EOL照料者的影响也对照顾者的就业产生了负面影响。因此,与长期或短期照料者相比,EOL照料者总体上经历了更大的负面影响,包括负面健康后果。这为以下断言提供了证据,即EOL护理是最紧张的护理类型,可能造成最大的照顾者负担;这体现在与短期和长期照顾者相比,EOL照顾者经历了更大的负面影响。
Using data from, this study explores whether differences exist in the impacts of care-giving among three groups of caregivers providing informal care either in the caregiver's or recipient's home, or in other locations within the community: (i) those providing end-of-life (EOL) care (n = 471); (ii) those providing long-term care (more than 2 years) for someone with a chronic condition or long-term illness (n = 2722); and (iii) those providing short-term care (less than 2 years) for someone with a chronic condition or long-term illness (n = 2381). This study lays out the variation in sociodemographic characteristics across the three caregiver groups while also building on our understanding of the differential impacts of care-giving through an analysis of determinants. All three groups of caregivers shared a number of sociodemographic characteristics, including being female, married, employed and living in a Census Metropolitan Area (CMA). With respect to health, EOL caregivers were found to have significantly higher levels of ‘fair or poor’ self-assessed health than the other two groups. Overall, the findings suggest that EOL caregivers are negatively impacted by the often additional role of care-giving, more so than both short-term and long-term caregivers. EOL caregivers experienced a higher proportion of negative impacts on their social and activity patterns. Furthermore, EOL caregivers incurred greater financial costs than the other two types of informal caregivers. The impacts of EOL care-giving also negatively influence employment for caregivers when compared with the other caregiver groups. Consequently, EOL caregivers, overall, experienced greater negative impacts, including negative health outcomes, than did long-term or short-term caregivers. This provides the evidence for the assertion that EOL care-giving is the most intense type of care-giving, potentially causing the greatest caregiver burden; this is shown through the greater negative impacts experienced by the EOL caregivers when compared with the short-term and long-term caregivers.