Perspectives of Participation in Daily Life From Cancer Survivors: A Qualitative Analysis.
Perspectives of Participation in Daily Life From Cancer Survivors: A Qualitative Analysis.
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DOI：
10.1016/j.arrct.2022.100212
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发表时间：
2022-09
影响因子：
--
通讯作者：
中科院分区：
文献类型：
--
作者：
描述癌症幸存者如何定义参与。横断面定性研究。参与者来自美国中西部的一个大型学术医疗中心。采访通过Zoom或电话进行。患有脑癌、乳腺癌、结直肠癌或肺癌的癌症存活者（N=40）（每组n=10）。参与者被有目的地抽样，以最大限度地提高研究样本的变异性。参与者年龄范围为26-83岁，平均年龄为55岁。70%的参与者在接受采访时正在接受积极的癌症治疗。不适用因参与者的观点来自1对1的半结构化访谈。研究者采用定性描述和主题分析的方法对访谈记录进行分析，并从数据中发展出主题。幸存者将参与描述为进行有价值的活动，并强调了4个共同方面：（1）控制;（2）社会联系;（3）参与各种环境;（4）培养快乐和目标。充分参与生活意味着能够做他们想做的事情，而不受限制或限制。幸存者对控制的看法概述了能力、选择、适应和控制点如何影响更广泛的控制感和参与感。访谈强调，参与仍然是癌症幸存者日常生活的核心。康复研究人员和临床医生需要建立一个标准和全面的参与定义。康复提供者需要不断评估参与如何影响癌症幸存者，并使用包括本研究和以前研究中确定的参与核心方面的措施。全面界定参与将改进衡量工具的设计和选择，并支持对幸存者经历的全面评估。
To characterize how survivors of cancer define participation. Cross-sectional qualitative study. Participants were enrolled from a large academic medical center in the Midwestern United States. Interviews were conducted over Zoom or phone. Survivors of cancer (N=40) with brain, breast, colorectal, or lung cancer (n=10 per group). Participants were purposively sampled to maximize variation in the study sample. Participant ages ranged from 26-83 years, with a mean age of 55 years. Seventy percent of participants were receiving active cancer treatment at the time of the interview. Not applicable. Participant perspectives gathered from 1-on-1 semistructured interviews. Qualitative description and thematic analysis were used to analyze interview transcripts and develop themes from the data. Survivors described participation as doing valued activities and highlighted 4 common aspects: (1) control; (2) social connection; (3) engaging in various contexts; and (4) cultivation of joy and purpose. Fully participating in life involved being able to do what they want to do without restrictions or limitations. Survivors’ perspectives of control outlined how competence, choice, adaptations, and locus of control influence broader feelings of control and participation. Interviews highlighted that participation remains central to daily life among survivors of cancer. Rehabilitation researchers and clinicians need to establish a standard and comprehensive definition of participation. Rehabilitation providers need to consistently evaluate how participation is affected among survivors of cancer and use measures that include core aspects of participation identified in this study and previous research. Comprehensively defining participation will improve the design and selection of measurement tools and support comprehensive assessment of survivor experiences.
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DOI：
10.1177/1539449219844749
发表时间：
2019-10-01
期刊：
OTJR-OCCUPATION PARTICIPATION AND HEALTH
影响因子：
--
作者：
Newman, Robin M.;Alfano, Catherine M.;Lyons, Kathleen Doyle
通讯作者：
Lyons, Kathleen Doyle
影响因子：
28.4
作者：
Global Burden of Disease Cancer Collaboration;Fitzmaurice C;Allen C;Barber RM;Barregard L;Bhutta ZA;Brenner H;Dicker DJ;Chimed-Orchir O;Dandona R;Dandona L;Fleming T;Forouzanfar MH;Hancock J;Hay RJ;Hunter-Merrill R;Huynh C;Hosgood HD;Johnson CO;Jonas JB;Khubchandani J;Kumar GA;Kutz M;Lan Q;Larson HJ;Liang X;Lim SS;Lopez AD;MacIntyre MF;Marczak L;Marquez N;Mokdad AH;Pinho C;Pourmalek F;Salomon JA;Sanabria JR;Sandar L;Sartorius B;Schwartz SM;Shackelford KA;Shibuya K;Stanaway J;Steiner C;Sun J;Takahashi K;Vollset SE;Vos T;Wagner JA;Wang H;Westerman R;Zeeb H;Zoeckler L;Abd-Allah F;Ahmed MB;Alabed S;Alam NK;Aldhahri SF;Alem G;Alemayohu MA;Ali R;Al-Raddadi R;Amare A;Amoako Y;Artaman A;Asayesh H;Atnafu N;Awasthi A;Saleem HB;Barac A;Bedi N;Bensenor I;Berhane A;Bernabé E;Betsu B;Binagwaho A;Boneya D;Campos-Nonato I;Castañeda-Orjuela C;Catalá-López F;Chiang P;Chibueze C;Chitheer A;Choi JY;Cowie B;Damtew S;das Neves J;Dey S;Dharmaratne S;Dhillon P;Ding E;Driscoll T;Ekwueme D;Endries AY;Farvid M;Farzadfar F;Fernandes J;Fischer F;G/Hiwot TT;Gebru A;Gopalani S;Hailu A;Horino M;Horita N;Husseini A;Huybrechts I;Inoue M;Islami F;Jakovljevic M;James S;Javanbakht M;Jee SH;Kasaeian A;Kedir MS;Khader YS;Khang YH;Kim D;Leigh J;Linn S;Lunevicius R;El Razek HMA;Malekzadeh R;Malta DC;Marcenes W;Markos D;Melaku YA;Meles KG;Mendoza W;Mengiste DT;Meretoja TJ;Miller TR;Mohammad KA;Mohammadi A;Mohammed S;Moradi-Lakeh M;Nagel G;Nand D;Le Nguyen Q;Nolte S;Ogbo FA;Oladimeji KE;Oren E;Pa M;Park EK;Pereira DM;Plass D;Qorbani M;Radfar A;Rafay A;Rahman M;Rana SM;Søreide K;Satpathy M;Sawhney M;Sepanlou SG;Shaikh MA;She J;Shiue I;Shore HR;Shrime MG;So S;Soneji S;Stathopoulou V;Stroumpoulis K;Sufiyan MB;Sykes BL;Tabarés-Seisdedos R;Tadese F;Tedla BA;Tessema GA;Thakur JS;Tran BX;Ukwaja KN;Uzochukwu BSC;Vlassov VV;Weiderpass E;Wubshet Terefe M;Yebyo HG;Yimam HH;Yonemoto N;Younis MZ;Yu C;Zaidi Z;Zaki MES;Zenebe ZM;Murray CJL;Naghavi M
通讯作者：
Naghavi M
影响因子：
3.1
作者：
Brick, Rachelle;Lyons, Kathleen Doyle;Leland, Natalie E.
通讯作者：
Leland, Natalie E.
影响因子：
2
作者：
SANDELOWSKI, M
通讯作者：
SANDELOWSKI, M
DOI：
10.1016/j.apmr.2016.04.017
发表时间：
2017-02-01
影响因子：
4.3
作者：
Ginis, Kathleen A. Martin;Evans, M. Blair;Noreau, Luc
通讯作者：
Noreau, Luc