An exploration of the experiences of informal carers supporting a relative living with dementia during and after the move to technology-enriched supported accommodation
An exploration of the experiences of informal carers supporting a relative living with dementia during and after the move to technology-enriched supported accommodation
复制标题
探索非正式护理人员在搬到技术丰富的支持住宿期间和之后为患有痴呆症的亲属提供支持的经历
作者：
J. Rondón;Jean Daly;B. McCormack;A. Ryan;Suzanne Martin
摘要本研究的目的是探讨家庭照顾者的经验，支持一个相对的生活与痴呆症期间和之后，移动到技术丰富的支持住宿（TESA）。本文探讨了非正式的照顾者（IC）的角色，促使移动到TESA的因素，以及他们的看法，他们的亲属的经验，移动和生活在一个技术丰富的环境。在一项定性研究中，25个半结构化的采访进行了与IC和数据进行了分析，按照主题的方法。确定了四个主题，反映了IC和痴呆症患者的角色和身份的转变。转向TESA与护理压力的减少有关，IC和痴呆症患者都报告了积极的结果。设施中的智能家居技术似乎不会影响过渡期间的决策，但是，它们被视为TESA设施内痴呆症患者生活体验的一部分。这些调查结果与政策制定者、专员和服务提供者有关，以强调所有利益攸关方从诊断开始就参与为痴呆症患者及其家人提供护理，以促进社区环境中以人为本的做法。
Abstract The aim of this study was to explore the experiences of family carers supporting a relative living with dementia during and after the move to technology-enriched supported accommodation (TESA). The paper explores the informal carers (ICs) roles, the factors prompting the move to TESA, alongside their perceptions of their relatives’ experience of the move and of life in a technology-enriched environment. Within a qualitative study 25 semi-structured interviews were conducted with ICs and data were analysed following a thematic approach. Four themes were identified, reflecting the shift in roles and identity of both ICs and persons living with dementia. The move to TESA was linked to a perceived reduction in care-giving pressures, with positive outcomes reported for both the ICs and the people living with dementia. Smart home technologies in the facilities did not appear to impact on the decision-making during transition, however, they were valued as part of the lived experience for the people living with dementia within the TESA facilities. These findings are relevant to policy makers, commissioners and providers of services to highlight the engagement of all stakeholders in the provision of care for people living with dementia and their families early from diagnosis in order to facilitate person-centred practices in community settings.