Family planning and family vision in mothers after diagnosis of a child with autism spectrum disorder.
Family planning and family vision in mothers after diagnosis of a child with autism spectrum disorder.
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DOI：
10.1177/1362361315602134
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发表时间：
2016-07
期刊：
影响因子：
--
通讯作者：
Webb SJ
中科院分区：
文献类型：
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作者：
Navot N;Jorgenson AG;Vander Stoep A;Toth K;Webb SJ
自闭症儿童的诊断对家庭功能有短期和长期的影响。对于早期诊断，诊断过程很可能与计划生育决策同时发生，但人们对父母如何驾驭这一过程知之甚少。本研究通过了解诊断前后家庭视野的变化，探讨美国自闭症谱系障碍儿童母亲的计划生育决策过程。共有22名2至4岁被诊断患有自闭症的第一胎孩子的母亲在孩子被诊断为自闭症前后接受了关于家庭视力的采访。数据分析采用扎根理论方法。研究结果表明，早期家庭愿景的一致性、母亲的认知灵活性和母亲对诊断的反应对未来的计划生育决策具有很大的影响。增加生育子女的决定反映了建立在坚实的内化家庭模式和灵活的生活方式基础上的高度适应性。停止养育孩子的决定反映了一个相对不太连贯的家庭模式和更僵化的认知风格，以及在确诊后管理生活的持续困难。这份报告可能会对卫生保健提供者加强治疗联盟和指导计划生育咨询有所帮助。
The diagnosis of a child with autism has short- and long-term impacts on family functioning. With early diagnosis, the diagnostic process is likely to co-occur with family planning decisions, yet little is known about how parents navigate this process. This study explores family planning decision making process among mothers of young children with autism spectrum disorder in the United States, by understanding the transformation in family vision before and after the diagnosis. A total of 22 mothers of first born children, diagnosed with autism between 2 and 4 years of age, were interviewed about family vision prior to and after their child’s diagnosis. Grounded Theory method was used for data analysis. Findings indicated that coherence of early family vision, maternal cognitive flexibility, and maternal responses to diagnosis were highly influential in future family planning decisions. The decision to have additional children reflected a high level of adaptability built upon a solid internalized family model and a flexible approach to life. Decision to stop childrearing reflected a relatively less coherent family model and more rigid cognitive style followed by ongoing hardship managing life after the diagnosis. This report may be useful for health-care providers in enhancing therapeutic alliance and guiding family planning counseling.