Telemedicine visits in myasthenia gravis: Expert guidance and the Myasthenia Gravis Core Exam (MG-CE).

Telemedicine visits in myasthenia gravis: Expert guidance and the Myasthenia Gravis Core Exam (MG-CE).
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重症肌无力的远程医疗访问:专家指导和重症肌无力核心检查(MG-CE)。

DOI:
10.1002/mus.27260
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发表时间:
2021-09
期刊:
影响因子:
3.4
通讯作者:
--
中科院分区:
医学3区
文献类型:
--
作者:

文献摘要

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Telemedicine may be particularly well-suited for myasthenia gravis (MG) due to the disorder’s need for specialized care, its hallmark fluctuating muscle weakness, and the potential for increased risk of virus exposure among patients with MG during the coronavirus disease 2019 (COVID-19) pandemic during in-person clinical visits. A disease-specific telemedicine physical examination to reflect myasthenic weakness does not currently exist. This paper outlines step-by-step guidance on the fundamentals of a telemedicine assessment for MG. The Myasthenia Gravis Core Exam (MG-CE) is introduced as a MG-specific, telemedicine, physical examination, which contains eight components (ptosis, diplopia, facial strength, bulbar strength, dysarthria, single breath count, arm strength, and sit to stand) and takes approximately 10 minutes to complete. Pre-visit preparation, remote ascertainment of patient-reported outcome scales and visit documentation are also addressed. Additional knowledge gaps in telemedicine specific to MG care are identified for future investigation.