An Unexpected Finding: Treatment History Associated with the Quality of Life in Chinese Patients with Port-Wine Stains.
An Unexpected Finding: Treatment History Associated with the Quality of Life in Chinese Patients with Port-Wine Stains.
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DOI：
10.2147/ccid.s421296
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发表时间：
2023
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中科院分区：
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葡萄酒色斑 (PWS) 主要位于面部和颈部。因此，PWS不仅影响美观，还可能造成心理困扰。然而，对中国 PWS 患者的生活质量（QoL）进行研究的研究却很少。评估 PWS 患者的生活质量。使用 Skindex-29 和皮肤科生活质量指数 (DLQI) 来调查 PWS 患者和健康对照者的生活质量。总共包括 198 名患有 PWS 的成年人和 200 名健康对照者。观察组Skindex-29症状、情绪、功能维度评分均显着高于对照组（P<0.05）。女性性别、病变部位和治疗史（如脉冲染料激光或光动力疗法）对 PWS 患者的评分（情绪和功能维度）有负面影响。观察组DLQI评分中位数为3分，对照组为0分（P<0.05），有既往治疗史的患者生活质量下降。 PWS 患者的生活质量受到损害。患者的生活质量受到女性性别、病变部位和治疗史的负面影响。 Skindex-29量表似乎更适用于PWS患者的生活质量研究。
Port-wine stains (PWS) are predominantly located on the face and neck. Hence, PWS affect not only aesthetic appearance but may also cause psychological distress. However, very few studies have researched on the quality of life (QoL) in Chinese patients with PWS. To evaluate QoL in patients with PWS. Skindex-29 and Dermatology Life Quality Index (DLQI) were used to investigate the QoL of the patients with PWS and healthy controls. In total, 198 adults with PWS and 200 healthy controls were included. The scores of symptomatic, emotional and functional dimensions of Skindex-29 in the observational group were significantly higher as compared with the control group (P<0.05). Female gender, lesion location and the treatment history (such as pulsed dye laser or photodynamic therapy) had a negative impact on the scores (emotional and functional dimensions) of the patients with PWS. The median DLQI score was 3 points in the observational group and 0 points in the control group (P<0.05), and QoL of patients who had a history of previous treatments was diminished. The QoL of patients with PWS is impaired. Patients’ QoL is negatively influenced by female gender, lesion location and treatment history. The Skindex-29 scale seems to be more applicable to the study of QoL of patients with PWS.