A Breast Cancer Smartphone App to Navigate the Breast Cancer Journey: Mixed Methods Study.
A Breast Cancer Smartphone App to Navigate the Breast Cancer Journey: Mixed Methods Study.
复制标题
乳腺癌智能手机应用程序导航乳腺癌之旅：混合方法研究。
DOI：
10.2196/28668
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发表时间：
2021-05-10
影响因子：
2.2
通讯作者：
Meani F
中科院分区：
文献类型：
--
作者：
Petrocchi S;Filipponi C;Montagna G;Bonollo M;Pagani O;Meani F
已经为诊断为癌症的患者设计了几个移动的应用程序。不幸的是，尽管有着令人鼓舞的潜力和令人印象深刻的传播，但其有效性往往仍然不清楚。大多数移动的应用程序都是在没有任何医疗专业人员参与和质量循证评估的情况下开发的。此外，它们通常在临床护理中实施，然后进行任何研究，以确认患者的可用性，升值和临床受益。我们的目标是开发一个新的智能手机应用程序（Centro di Senologia della Svizzera Italiana [CSSI]），专门由乳房护理专家和患者共同设计，以帮助乳腺癌患者更好地了解和组织他们的癌症诊断和治疗之旅。我们描述了应用程序的开发，并提出了评估，以评估其可行性，有用性和能力，以提高患者的权力。一个混合的方法研究与简短的纵向定量数据收集和随后的定性半结构化访谈的设计。20名乳腺癌患者参加了这项研究（平均年龄51岁，SD 10岁）。1个月后，对应用程序的可用性、用户体验和授权进行了测量。半结构化访谈测量了应用程序的实用性和必要的改进。该应用程序在以下方面得到了患者的良好反应：对应用程序目的的积极看法（7/20，35%），组织治疗路径并了解癌症管理的步骤（5/20，25%），促进医患沟通（4/20，20%），以及有关医院提供的资源的详细信息（2/20，10%）。相关性和回归分析显示，用户体验提高了患者的授权水平（B=0.31，95% CI 0.22-0.69; P= 0.009）。采访表明，需要不断更新应用程序，并使其与医院的电子议程同步，并仔细选择向最终用户提供工具的最佳时间被认为是至关重要的。尽管本研究的参与者人数很少，但研究结果证明了该应用程序的潜力，并支持一项全面的试验，以评估移动的健康应用程序的授权效果。在第二阶段，将使用涉及更大研究样本的应用程序的改进版本收集更多数据。
Several mobile apps have been designed for patients with a diagnosis of cancer. Unfortunately, despite the promising potential and impressive spread, their effectiveness often remains unclear. Most mobile apps are developed without any medical professional involvement and quality evidence-based assessment. Furthermore, they are often implemented in clinical care before any research is performed to confirm usability, appreciation, and clinical benefits for patients. We aimed to develop a new smartphone app (Centro di Senologia della Svizzera Italiana [CSSI]) specifically designed by breast care specialists and patients together to help breast cancer patients better understand and organize their journey through the diagnosis and treatment of cancer. We describe the development of the app and present assessments to evaluate its feasibility, usefulness, and capability to improve patient empowerment. A mixed method study with brief longitudinal quantitative data collection and subsequent qualitative semistructured interviews was designed. Twenty breast cancer patients participated in the study (mean age 51 years, SD 10 years). The usability of the app, the user experience, and empowerment were measured after 1 month. The semistructured interviews measured the utility of the app and the necessary improvements. The app received good responses from the patients in terms of positive perception of the purpose of the app (7/20, 35%), organizing the cure path and being aware of the steps in cancer management (5/20, 25%), facilitating doctor-patient communication (4/20, 20%), and having detailed information about the resources offered by the hospital (2/20, 10%). Correlation and regression analyses showed that user experience increased the level of empowerment of patients (B=0.31, 95% CI 0.22-0.69; P=.009). The interviews suggested the need to constantly keep the app updated and to synchronize it with the hospital’s electronic agenda, and carefully selecting the best time to offer the tool to final users was considered crucial. Despite the very small number of participants in this study, the findings demonstrate the potential of the app and support a fully powered trial to evaluate the empowering effect of the mobile health app. More data will be gathered with an improved version of the app in the second phase involving a larger study sample.
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影响因子：
7.4
作者：
Bender JL;Yue RY;To MJ;Deacken L;Jadad AR
通讯作者：
Jadad AR
影响因子：
3.9
作者：
Foley, N. M.;O'Connell, E. P.;Corrigan, M. A.
通讯作者：
Corrigan, M. A.
影响因子：
3.1
作者：
Spreitzer, GM
通讯作者：
Spreitzer, GM
影响因子：
7.4
作者：
Whittaker R
通讯作者：
Whittaker R
影响因子：
7.4
作者：
Attai, Deanna J.;Cowher, Michael S.;Landercasper, Jeffrey
通讯作者：
Landercasper, Jeffrey