Clinicians’ Attitudes toward Patients with Disorders of Consciousness: A Survey

Clinicians’ Attitudes toward Patients with Disorders of Consciousness: A Survey
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临床医生对意识障碍患者的态度:一项调查

DOI:
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发表时间:
2014
期刊:
影响因子:
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通讯作者:
C. Petrini
C. Petrini
中科院分区:
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文献类型:
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作者:
M. Farisco;E. Alleva;F. Chiarotti;S. Macrì;C. Petrini

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尽管在方法论上取得了根本性的进步,但有关意识障碍 (DOC) 的科学信息——例如植物人状态/无反应觉醒综合症 (VS/UWS) 和最低意识状态 (MCS) — 不完整。 DOC 州区分不同意识水平的可能性需要治疗策略和伦理问题。在这里,我们试图调查意大利临床医生和基础科学家对 DOC 患者护理和研究中出现的一些问题的看法。我们的调查显示,与 DOC 患者一起工作的意大利医生非常重视道德规范。目前意大利有关 DOC 患者基础研究的法规显然有不足以支持科学进步的风险,与普通治疗相比,值得进行不同的评估。我们认为我们的调查结果值得国际受众的关注,因为它们说明了对 DOC 患者相关问题定义共同方法的难度,以及在伦理和法律层面更好地评估 DOC 患者的普通和实验治疗的必要性。
Notwithstanding fundamental methodological advancements, scientific information about disorders of consciousness (DOCs)—e.g. Vegetative State/Unresponsive Wakefulness Syndrome (VS/UWS) and Minimally Conscious State (MCS)—is incomplete. The possibility to discriminate between different levels of consciousness in DOC states entails treatment strategies and ethical concerns. Here we attempted to investigate Italian clinicians’ and basic scientists’ opinions regarding some issues emerging from the care and the research on patients with DOCs. From our survey emerged that Italian physicians working with patients with DOCs give a central role to ethics. Current Italian regulation regarding basic research conducted in patients with DOCs apparently risks to be inadequate to support scientific advancement, and would deserve a different assessment compared to ordinary treatments. We think the results of our survey deserve attention from an international audience because they exemplify the difficulty to define a shared approach to the issues related to patients with DOCs and the necessity to better assess both the ordinary and experimental treatment of patients with DOCs at the ethical and legal level.
昏迷和意识科学的新时代。
DOI: 10.1016/s0079-6123(09)17728-2
发表时间: 2009
影响因子: --
作者:
Owen AM
通讯作者: Owen AM