Cancer survivors of African descent posttreatment breast cancer surveillance and follow-up care experiences of breast - An exploratory qualitative study

Cancer survivors of African descent posttreatment breast cancer surveillance and follow-up care experiences of breast - An exploratory qualitative study
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DOI:
10.1097/00002820-200611000-00009
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发表时间:
2006-11-01
期刊:
影响因子:
2.6
通讯作者:
Coker, Crystal
Coker, Crystal
中科院分区:
医学2区
文献类型:
--
作者:
Thompson, Hayley S.;Littles, Monique;Coker, Crystal

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乳腺癌幸存者乳腺癌复发的风险相当大,与从未确诊的妇女相比,患新乳腺癌的风险更高。建议幸存者进行仔细的乳腺癌监测,因为早期发现的癌症更容易治疗。然而,数据表明,非洲裔美国人幸存者的监测,特别是乳房X光检查,低于白色幸存者。关于非裔幸存者接受治疗后乳腺癌监测的一般经验,几乎没有发表过相关著作。在目前的定性试点研究中,对关键的知情人进行了访谈,以探讨以下问题:(1)向非洲人后裔幸存者提供或幸存者获得的治疗后监测信息的程度;(2)幸存者在过去一年中实际得到的后续护理;(3)促进或阻碍护理的因素。参与者是10名非洲裔美国人和非洲加勒比乳腺癌幸存者。幸存者报告了促使他们获得后续护理的一些因素:保持健康的愿望,对复发的担忧,医疗保健提供者的支持,家庭关系,与其他幸存者的关系,以及宗教/精神信仰。幸存者还报告了护理障碍:害怕复发,家人和朋友的支持不足,缺乏有关治疗后后续护理的信息,以及医疗费用。这些结果代表了形成性的工作,可以为类似的研究提供信息,这些研究在非洲裔幸存者的更大样本中审查乳腺癌监测和后续护理的因素。
Breast cancer survivors are at considerable risk for breast cancer recurrence and at higher risk of developing a new breast cancer compared with women never diagnosed. It is recommended that survivors undergo careful breast cancer surveillance as cancers detected early are more treatable. However, data indicate that surveillance among African American survivors, particularly mammography, is lower than that of white survivors. There is little published work focusing on general experiences of posttreatment breast cancer surveillance among survivors of African descent. In the current qualitative pilot study, key informant interviews were conducted in order to explore the following: (1) the extent of posttreatment surveillance information provided to or obtained by survivors of African descent; (2) the actual follow-up care received by survivors in the past year; and (3) factors that are either motivators of or barriers to care. Participants were 10 African American and African Caribbean breast cancer survivors. Survivors reported a number of factors that motivated them in obtaining follow-up care: a desire to maintain good health, concern about recurrence, support from healthcare providers, familial relationships, relationships with other survivors, and religious/spiritual faith. Survivors also reported barriers to care: fear of recurrence, low support from family and friends, lack of information about posttreatment follow-up care, and medical care costs. These results represent formative work that may inform similar studies examining factors in breast cancer surveillance and follow-up care in larger samples of survivors of African descent.