Exploring patients' opinions of activity pacing and a new activity pacing questionnaire for chronic pain and/or fatigue: a qualitative study
Exploring patients' opinions of activity pacing and a new activity pacing questionnaire for chronic pain and/or fatigue: a qualitative study
复制标题
DOI：
10.1016/j.physio.2015.08.001
复制
发表时间：
2016-09-01
期刊：
影响因子：
3.3
通讯作者：
McGowan, Linda
中科院分区：
文献类型：
--
作者：
Antcliff, Deborah;Keeley, Philip;McGowan, Linda
目的 尽管经常建议将活动节奏作为慢性疼痛和/或疲劳患者的应对策略，但对节奏的解释有不同的方式，并且缺乏广泛接受的节奏量表。我们开发了新的活动节奏问卷（APQ）。本研究的目的是探讨患者对起搏概念的看法和信念，以及 APQ 的可接受性。使用半结构化电话访谈设计定性实用研究。使用框架分析对数据进行分析。参与者是通过有目的抽样招募的 16 名在二级护理理疗门诊就诊的成年患者。诊断包括慢性腰痛、慢性广泛性疼痛、纤维肌痛和慢性疲劳综合征/肌痛性脑脊髓炎。调查结果从参与者的描述中，起搏是一个多方面的概念。起搏的实施受到参与者的年龄、合并症的存在和参与者的情绪的影响。与两个现有的起搏子量表相比，APQ 被认为是普遍可以接受的。参与者使用配额/症状相关方法开展活动。出现了四种行为类型：任务回避、任务持续、任务波动（繁荣-萧条）和任务调整（活动节奏）。结论 APQ 似乎很容易完成，并且对于接受物理治疗以管理长期状况的患者来说是可以接受的。结果表明，个体患者在不同程度上实施了不同的起搏方面，并且明显存在不同的行为类型。行为类型与起搏方面之间的关系需要进一步研究，以促进有效的定制起搏干预措施的发展。 (C) 2015 年特许物理治疗学会。由爱思唯尔有限公司出版。保留所有权利。
Objective Despite the frequent recommendation of activity pacing as a coping strategy for patients with chronic pain and/or fatigue, pacing is interpreted in different ways and there is an absence of a widely accepted pacing scale. We have developed a new Activity Pacing Questionnaire (APQ). The aims of this study were to explore patients' views and beliefs about the concept of pacing, together with the acceptability of the APQ.Design Qualitative pragmatic study using semi-structured telephone interviews. Data were analysed using Framework analysis.Participants 16 adult patients attending secondary care physiotherapy out-patient departments were recruited via purposive sampling. Diagnoses included chronic low back pain, chronic widespread pain, fibromyalgia and chronic fatigue syndrome/myalgic encephalomyelitis.Findings Pacing emerged as a multifaceted concept from participants' descriptions. The implementation of pacing was influenced by participants' age, the presence of co-morbidities and participants' emotions. The APQ was found to be generally acceptable in comparison to two existing pacing subscales. Participants undertook activities using quota/symptom-contingent approaches. Four behavioural typologies emerged: Task avoidance, Task persistence, Task fluctuation (boom-bust) and Task modification (activity pacing).Conclusions The APQ appears to be easy to complete, and acceptable to patients who are attending physiotherapy for the management of long-term conditions. It emerged that individual patients implemented different pacing facets to varying degrees, and that different behavioural typologies were apparent. The relationships between behavioural typologies and facets of pacing warrant further investigation to facilitate the development of effective tailored pacing interventions. (C) 2015 Chartered Society of Physiotherapy. Published by Elsevier Ltd. All rights reserved.