The experiences of people with an intersex condition: a journey from silence to voice
The experiences of people with an intersex condition: a journey from silence to voice
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DOI：
10.1111/j.1365-2702.2008.02710.x
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发表时间：
2009-06-01
影响因子：
4.2
通讯作者：
Gilmour, Jean A.
中科院分区：
文献类型：
--
作者：
MacKenzie, Drew;Huntington, Annette;Gilmour, Jean A.
这项研究的目的是探索具有阴阳人条件的人的经历。其主要目的是通过为社会上看不见的一群人发声来促进对这种状况的了解。历史上，对双性病症的医疗管理一直侧重于通过性别分配和医疗/手术干预来消除视觉上的身体差异，以确保一致的身体外观。双性人的条件需要支持，生活在一个正常化的社会没有耻辱，并需要特别敏感的照顾时，与卫生系统进行了小规模的定性研究。招募参与者是困难的，因为隐形和边缘化造成的障碍。在与一位联系人进行了广泛而仔细的谈判后，三位新西兰人同意参加这项研究。我们进行了深入的访谈，并使用主题分析来开发参与者经历中的共同主题。从数据中得出三个主题：管理沉默，应对差异和接受的发展。这些主题强调：社会无知的负面影响，缺乏对身体差异的接受，以及从沉默到公开和接受性别认同中的个性和选择的旅程。这些发现强调了护士需要成为知识渊博和熟练的沟通者，以确保年龄-提供适当的信息和支持，使两性人能够在性别识别和正常化方面做出个人选择。许多护士将不了解阴阳人的状况，对这一群体所面临的挑战知之甚少，但很可能参与对他们的照顾。有中间性条件的人需要特别敏感的护理，如果护士意识到这种情况及其挑战，他们可以提供适当的，支持性的和“安全”的护理。
The aim of this research was to explore the experiences of people with intersex conditions. The main objective was to contribute to knowledge of the condition by giving voice to a group of people who are invisible in society.Medical management of intersex conditions has historically focused on erasing visual bodily difference through gender assignation and medical/surgical intervention to ensure congruent body appearance. People with intersex conditions require support to live free from shame in a normalising society and need particularly sensitive care when engaged with the health system.A small-scale qualitative study was undertaken. Recruitment of participants was difficult because of barriers created by invisibility and marginalisation. After extensive and careful negotiation with one contact, three people in New Zealand agreed to participate in the research.In-depth interviews were undertaken and thematic analysis used to develop themes that were common across participants' experiences.Three themes emerged from the data: managing silence, coping with difference and development of acceptance. These themes highlight: the negative impact of societal ignorance, lack of acceptance of body difference and the journey from silence to disclosure and acceptance of individuality and choice in gender identification.These findings highlight the need for nurses to be knowledgeable and skilled communicators to ensure age-appropriate information and support is provided to enable individual choice in gender identification and normalisation for people with intersex conditions.Many nurses will be unaware of the condition of being intersex and have little knowledge of the challenges faced by this group yet are likely to be involved in their care. People with intersex conditions require particularly sensitive care and nurses can provide appropriate, supportive and 'safe' care if they are aware of the condition and its challenges.