The importance of assessing self-reported HIV status in bio-behavioural surveys
The importance of assessing self-reported HIV status in bio-behavioural surveys
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DOI：
10.2471/blt.15.162933
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发表时间：
2016-08-01
影响因子：
11.1
通讯作者：
Raymond, H. Fisher
中科院分区：
文献类型：
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作者：
Johnston, Lisa G.;Sabin, Miriam Lewis;Raymond, H. Fisher
在测量人类免疫缺陷病毒 (HIV) 感染率的生物行为调查中，应询问受访者上次 HIV 检测的结果。然而，许多政府当局、非政府组织、研究人员和其他民间社会利益相关者表示，不应要求参与此类调查的受访者自我报告其艾滋病毒状况。不要求受访者报告其状况的原因是，答复可能不准确，并且询问艾滋病毒状况可能会侵犯受访者的人权并加剧耻辱和歧视。尽管如此，我们认为，在抗逆转录病毒治疗时代，要求生物行为调查的受访者自我报告其艾滋病毒状况对于衡量和改善艾滋病毒感染护理、治疗和预防服务的获取和覆盖范围至关重要。对于估计应对艾滋病毒流行方面未满足的需求的真实规模以及正确解释与艾滋病毒感染的获得和传播相关的行为也很重要。现有数据表明，健康相关调查的大多数参与者愿意回答有关艾滋病毒状况的问题，这可能是有关性行为和吸毒行为的几个敏感问题之一。最终，艾滋病毒状况自我报告的正常化可以帮助国际社会从所谓的例外主义时代转向去污名化时代，从而改善全世界的流行病应对措施。
In bio-behavioural surveys measuring prevalence of infection with human immunodeficiency virus (HIV), respondents should be asked the results of their last HIV test. However, many government authorities, nongovernmental organizations, researchers and other civil society stakeholders have stated that respondents involved in such surveys should not be asked to self-report their HIV status. The reasons offered for not asking respondents to report their status are that responses may be inaccurate and that asking about HIV status may violate the respondents' human rights and exacerbate stigma and discrimination. Nevertheless, we contend that, in the antiretroviral therapy era, asking respondents in bio-behavioural surveys to self-report their HIV status is essential for measuring and improving access to - and coverage of - services for the care, treatment and prevention of HIV infection. It is also important for estimating the true size of the unmet needs in addressing the HIV epidemic and for interpreting the behaviours associated with the acquisition and transmission of HIV infection correctly. The data available indicate that most participants in health-related surveys are willing to respond to a question about HIV status as one of possibly several sensitive questions about sexual and drug use behaviours. Ultimately, normalizing the self-reporting of HIV status could help the global community move from an era of so-called exceptionalism to one of destigmatization - and so improve the epidemic response worldwide.