Self-portraits of families with young adult cancer survivors: using photovoice.
Self-portraits of families with young adult cancer survivors: using photovoice.
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有年轻成年癌症幸存者的家庭的自画像：使用照片语音。
DOI：
10.1080/07347331003678329
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发表时间：
2010
影响因子：
2.1
通讯作者：
Zebrack,Brad
中科院分区：
文献类型：
--
作者：
Yi,Jaehee;Zebrack,Brad
PhotoVoice是一种参与式的研究方法，个人用它来记录他们的日常生活。这项研究使用PhotoVoice来了解癌症对六名儿童癌症幸存者(YACS)及其家庭成员的影响。用他们自己的话来说，YACS小组的主题包括“失去的童年”、“我的文化”、“健康”、“是什么让我继续前进/牺牲”和“我是谁？”这些家庭成员包括“癌症如何影响幸存者的希望和梦想？”、“癌症的积极影响”、“信息的重要性”、“自我护理的障碍”和“我们学到了什么和我们能做什么”。以家庭为基础和参与者驱动的框架和PhotoVoice产生了一些新的调查结果，呼吁青年行动--关于社会关系、独立性和职业的有针对性的指导和培训；从以家庭为导向的文化向家庭提供支持；以及促进家庭对话。
Photovoice is a participatory research methodology in which individuals photograph their everyday realities. The present study used photovoice to understand the impact of cancer on a sample of six young adult survivors of childhood cancer (YACS) and their family members. The themes of the YACS group included, in their own words, “lost childhood,” “my culture,” “health,” “what keeps me going/sacrifices,” and “who am I?” Those of the family group included “how cancer affected survivors' hopes and dreams?,” “positive impact of cancer,” “importance of information,” “barriers to self-care,” and “what we learned and what we can do.” The family-based and participants-driven framework and photovoice produced some novel findings that call for YACS-targeted guidance and training on social relationships, independence, and career; support for the families from family-oriented cultures; and facilitation of family dialogue.