Genetic testing and employer-sponsored wellness programs: An overview of current vendors, products, and practices.
Genetic testing and employer-sponsored wellness programs: An overview of current vendors, products, and practices.
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DOI：
10.1002/mgg3.1414
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发表时间：
2020-10
影响因子：
2
通讯作者：
Williams MS
中科院分区：
文献类型：
--
作者：
McDonald WS;Wagner JK;Deverka PA;Woods LA;Peterson JF;Williams MS
雇主赞助的企业健康计划已经普及，尽管在改善健康或降低成本方面的有效性证据有限。一些项目提供基因检测作为员工的福利，但对这种做法知之甚少。2019年12月，我们进行了系统的谷歌搜索，以确定提供涉及遗传学的企业健康计划的供应商。我们对有关供应商在其网站上披露的产品和做法的公开信息进行了定性内容分析。确定了15个供应商。关于健康计划中提供的基因检测的细节很难从供应商的网站上破译，包括哪些特定的产品包括在内。没有提供证据证明供应商所称的雇主费用、雇员健康和工作业绩方面的改善。只有一半提供健康和遗传咨询服务。大多数供应商对数据共享的态度模棱两可。供应商在声明的风险和限制中使用了免责条款，表面上是为了避免监督和责任。我们发现企业健康计划供应商缺乏透明度，强调了利益相关者在试图评估（a）这些计划如何使用遗传学时遇到的挑战，（B）这些应用的潜在好处，以及（c）确保科学证据支持任何健康声明和遗传非歧视的保护措施是否充分。
Employer‐sponsored corporate wellness programs have spread despite limited evidence of effectiveness in improving health or reducing costs. Some programs have offered genetic testing as a benefit to employees, but little is known about this practice. In December 2019, we conducted a systematic Google search to identify vendors offering corporate wellness programs involving genetics. We performed qualitative content analysis of publicly available information about the vendors’ products and practices disclosed on their websites. Fifteen vendors were identified. Details regarding genetic testing offered within wellness programs were difficult to decipher from vendors’ websites, including which specific products were included. No evidence was provided to support vendor claimed improvements in employer costs, employee health, and job performance. Only half offered health and genetic counseling services. Most vendors were ambiguous regarding data sharing. Disclaimer language was included in vendors’ stated risks and limitations, ostensibly to avoid oversight and liability. We found a lack of transparency among corporate wellness program vendors, underscoring challenges that stakeholders encounter when trying to assess (a) how such programs are using genetics, (b) the potential benefits of such applications, and (c) the adequacy of protections to ensure scientific evidence support any health claims and genetic nondiscrimination.
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