"I want the doctors to know that I am as bright as a candle": : Experiences with and Hopes for Doctor Interactions Among Malaysian Key Populations and People Living with HIV.

"I want the doctors to know that I am as bright as a candle": : Experiences with and Hopes for Doctor Interactions Among Malaysian Key Populations and People Living with HIV.
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DOI:
10.1007/s10461-022-03942-9
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发表时间:
2023-07
期刊:
影响因子:
4.4
通讯作者:
Kamarulzaman, Adeeba
Kamarulzaman, Adeeba
中科院分区:
医学2区
文献类型:
--
作者:
Earnshaw, Valerie A.;Cox, Jon;Wong, Pui Li;Saifi, Rumana;Walters, Suzan;Azwa, Iskandar;Omar, Sharifah Faridah Syed;Collier, Zachary K.;Hassan, Asfarina Amir;Lim, Sin How;Wickersham, Jeffrey;Haddad, Marwan S.;Kamarulzaman, Adeeba

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在与艾滋病毒相关的强烈结构性耻辱背景下,卫生保健环境中的耻辱是艾滋病毒预防和治疗的有害障碍。先前的工作记录了马来西亚医生对关键人群和艾滋病毒感染者(PLWH)的大量耻辱。然而,马来西亚关键人群和PLWH的观点仍未得到充分研究。2021年,代表关键人群和PLWH的34名马来西亚参与者参与了一项光声研究,旨在定性地探索他们与医生互动的经历和希望。许多参与者报告说医生对他们有偏见,认为医生认为他们不正常、有罪、被误导、无能。一些人强调,他们戴着象征性的面具是为了向医生隐瞒自己的某些方面。然而,许多人仍然希望与医生建立建设性的关系。他们想让医生知道他们聪明、能干、善良、有价值。需要采取干预措施,以解决在具有强烈结构性耻辱感的环境中工作的医生的耻辱感。
Stigma in healthcare settings is a pernicious barrier to HIV prevention and treatment in contexts with strong HIV-related structural stigma. Previous work has documented substantial stigma towards key populations and people living with HIV (PLWH) among Malaysian doctors. The perspectives of Malaysian key populations and PLWH, however, remain understudied. In 2021, 34 Malaysian participants representing key populations and PLWH engaged in a photovoice study designed to qualitatively explore their experiences with and hopes for doctor interactions. Many participants reported stigma from their doctors, perceiving that doctors view them as not normal, sinful, misguided, and incapable. Several emphasized that they wear figurative masks to conceal aspects of themselves from doctors. Yet, many also remain hopeful for constructive relationships with doctors. They want their doctors to know that they are bright, capable, kind, and valuable. Interventions are needed to address stigma among doctors working in contexts with strong structural stigma.
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