A U.S. Survey of Patients with Parkinson's Disease: Satisfaction with Medical Care and Support Groups
A U.S. Survey of Patients with Parkinson's Disease: Satisfaction with Medical Care and Support Groups
复制标题
DOI：
10.1002/mds.23160
复制
发表时间：
2010-10-15
影响因子：
8.6
通讯作者：
Biglan, Kevin M.
中科院分区：
文献类型：
--
作者：
Dorsey, E. Ray;Voss, Tiffini S.;Biglan, Kevin M.
在美国，患者对帕金森氏病(PD)护理和对支持小组的使用的满意度相对较少。我们调查了穆罕默德·阿里·帕金森疾病登记处的成员，以评估对医疗护理的满意度，并评估支持小组的使用情况。满意度是根据5分的利克特量表来衡量的，高满意度的定义是4分或5分。我们使用多元Logistic回归来确定与高满意度和支持团体使用相关的因素。有效率为38%(1923年第726号)。大多数人(57%)对PD护理表示高度满意。个人对提供者与他们共处的时间(61%)和PD教育(56%)最满意，但对预后信息(35%)和关于非药物干预的信息(28%)最不满意。看PD专科医生的患者对他们的护理的满意度是看普通神经科医生的患者的三倍(OR 53.0，95%CI：1.92-4.71；P<；0.0001)。支持小组的使用很常见，61%的调查受访者在任何时候都参加过支持小组。高加索人种(OR 5 2.85，95%CI：1.45~5.61)、PD病程(OR=1.05/年，CI：1.01~1.10)和PD专科护理(OR=1.80，CI：1.16~2.77)与较多的支持小组出席率相关。总体而言，49%的人表示对他们的支持小组非常满意。最大的担忧是具体需求没有得到解决(15%)，以及团队内部专业知识不足(14%)。大多数帕金森氏症患者都表示了很高的满意度，尤其是对专科医生的护理。在诊所或通过支持小组进行专门护理和改进教育，可能会提高满意度和卫生保健质量。(C)2010年流动无序社会
Relatively little is known about patient satisfaction with Parkinson's disease (PD) care and the use of support groups in the United States. We surveyed members of the Muhammad Ali Parkinson's Disease Registry to assess satisfaction with medical care and to evaluate support group use. Satisfaction was measured on a 5-point Likert scale, with high satisfaction defined as a four or five. We used multiple logistic regression to identify factors associated with high satisfaction and support group use. The response rate was 38% (726 of 1923). Most (57%) expressed high satisfaction with PD care. Individuals were most satisfied with the time their provider spent with them (61%) and PD education (56%) but least satisfied with prognostic information (35%) and information about non-drug interventions (28%). Patients seeing a PD specialist were three times more satisfied with their care than those seeing a general neurologist (OR 5 3.00, 95% CI: 1.92-4.71; P < 0.0001). Support group use is common, and 61% of survey respondents had attended one at any point. Caucasian race (OR 5 2.85, 95% CI: 1.45-5.61), PD duration (OR = 1.05 per year, CI: 1.01-1.10), and PD specialist care (OR = 1.80, CI: 1.16-2.77) were associated with greater support group attendance. Overall, 49% reported high satisfaction with their support group. The greatest concerns were specific needs not being addressed (15%) and insufficient expertise within the group (14%). Most individuals with Parkinson's disease expressed high levels of satisfaction, especially with specialist care. Specialty care and improved education, in the clinic or through support groups, may enhance satisfaction and health care quality. (C) 2010 Movement Disorder Society