What are the factors that facilitate or hinder resilience in older spousal dementia carers? A qualitative study
What are the factors that facilitate or hinder resilience in older spousal dementia carers? A qualitative study
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DOI：
10.1080/13607863.2014.977771
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发表时间：
2015-10-03
影响因子：
3.4
通讯作者：
Soulsby, Laura K.
中科院分区：
文献类型：
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作者：
Donnellan, Warren J.;Bennett, Kate M.;Soulsby, Laura K.
目的：我们对照顾痴呆症配偶的负担因素了解很多。然而，人们对帮助一些配偶变得有弹性的因素知之甚少。我们将韧性定义为“谈判，管理和适应重大压力或创伤来源的过程”。我们的目的是评估是否配偶痴呆照顾者可以实现弹性，并突出哪些资产和资源，他们利用，以促进或阻碍弹性，使用生态framework.Method：20个深入的定性访谈与配偶照顾者从两个照顾者支持小组和护理之家在西北England.Results：8名参与者有弹性，12人没有。一个有弹性的照顾者的特点是保持积极的态度，积极维护他们的关系，并爱一个人的前自我。有复原力的照顾者知识渊博，并得到家人，特别是朋友的大力支持，他们与朋友分享这方面的知识。他们更积极地参与服务，如喘息care.Conclusion：有必要走向更多的生态模型的弹性。我们认为，获得资产和资源并不总是足以促进复原力。这些研究结果的影响进行了讨论。
Objectives: Much is known about the factors making caring for a spouse with dementia burdensome. However, relatively little is known about factors that help some spouses become resilient. We define resilience as 'the process of negotiating, managing and adapting to significant sources of stress or trauma'. We aimed to assess whether spousal dementia carers can achieve resilience and to highlight which assets and resources they draw on to facilitate or hinder resilience, using an ecological framework .Method:Twenty in-depth qualitative interviews with spousal carers from two carer support groups and a care home in North West England.Results: Eight participants were resilient and 12 were not. A resilient carer was characterised as someone who stays positive and actively maintained their relationship and loved one's former self. Resilient carers were knowledgeable and well supported by family but especially friends, with whom they shared this knowledge. They were more actively engaged with services such as respite care.Conclusion: There is a need to move towards more ecological models of resilience. We propose that access to assets and resources is not always sufficient to facilitate resilience. Implications of these findings are discussed.