The language of breathlessness: do families and health care providers speak the same language when describing asthma symptoms?
The language of breathlessness: do families and health care providers speak the same language when describing asthma symptoms?
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DOI：
10.1016/j.pedhc.2005.01.010
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发表时间：
2005-07-01
期刊：
影响因子：
--
通讯作者：
Anson, Elizabeth
中科院分区：
文献类型：
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作者：
Yoos, H Lorrie;Kitzman, Harriet;Anson, Elizabeth
引言：关于症状的有效沟通是适当治疗的关键先决条件。研究目的是：（a）记录哮喘儿童及其父母与哮喘相关的症状，（B）确定哮喘症状的“专业模型“和“非专业模型”之间的差异，（c）描述家庭对症状的反应，（d）调查父母对“良好控制”的评估与使用国家哮喘教育和预防计划标准获得的严重程度之间的一致性。哮喘儿童及其父母（N = 228）从不同的临床实践网站招募。父母和孩子描述了他们与哮喘急性发作相关的症状和他们建议的措施。感知哮喘控制进行了比较，一个结构化的评估severity.RESULTS：136独特的症状报告。虽然78%的父母报告至少有一种标准哮喘症状，但48%的父母还报告了非标准哮喘症状。65%的父母的孩子的症状与严重哮喘一致，报告说“控制良好”。讨论：改善有关症状的沟通将改善哮喘护理。建议的策略包括标准化的筛查问卷来评估症状，更频繁地对持续性哮喘儿童进行常规访视，以及广泛传播症状控制的现实目标。
INTRODUCTION: Effective communication about symptoms is a critical prerequisite to appropriate treatment. Study aims were to: (a) document the symptoms that children with asthma and their parents associate with asthma, (b) identify differences between the "professional model "of asthma symptoms and the "lay model," (c) describe the family's proposed action in response to symptoms, and (d) investigate the congruence between parental assessment of "good control" and severity obtained using National Asthma Education and Prevention Program criteria.METHOD: Children with asthma and their parents (N = 228) were recruited from diverse clinical practice sites. Parents and children described symptoms they associated with an asthma exacerbation and their proposed action. Perceived asthma control was compared with a structured assessment of severity.RESULTS: One hundred and thirty-six unique symptoms were reported. While 78% of parents reported at least one standard asthma symptom, 48% also reported nonstandard asthma symptoms. Sixty-five percent of parents whose children's symptoms were consistent with severe asthma reported "good control."DISCUSSION: Improved communication about symptoms would improve asthma care. Proposed strategies include standardized screening questionnaires to assess symptoms, more frequent routine visits for children with persistent asthma, and wide dissemination of realistic goals for symptom control.