Who cares? Managing obligation and responsibility across the changing landscapes of informal dementia care

Who cares? Managing obligation and responsibility across the changing landscapes of informal dementia care
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DOI:
10.1017/s0144686x12000311
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发表时间:
2013-07-01
期刊:
影响因子:
2.5
通讯作者:
Egdell, Valerie
Egdell, Valerie
中科院分区:
法学2区
文献类型:
--
作者:
Egdell, Valerie

文献摘要

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本文探讨了不同的方式,非正式照顾者与老年痴呆症患者的谈判,他们的护理角色在不断变化的组织和空间景观的照顾。深入的定性数据被用来证明,照顾者的决定是社会地位和谈判的结果,涉及个人,家庭和更广泛的文化期望。这些决定影响到护理发生的地点。在解决这些问题,本文提请注意缺乏选择,一些照顾者可能在照顾的角色;如何以及为什么照顾者利用支持;和不同的期望的照顾者的能力在不同的护理网站,特别是在家里和养老院。它的结论是,研究和政策的注意力应该集中在如何的作用和能力的照顾者的期望是受影响的地方,以及如何,提供照顾。在这样做的过程中,本文有助于新兴的健康地理文献照顾,以及发展空间的角度来看,在既定的老年学文献。
This paper explores the different ways in which informal carers for people with dementia negotiate their care-giving role across the changing organisational and spatial landscape of care. In-depth qualitative data are used to argue that the decisions of carers are socially situated and the result of negotiations involving individuals, families and wider cultural expectations. These decisions affect where care occurs. In addressing these issues this paper draws attention to the lack of choice some carers may have in taking on the care-giving role; how and why carers draw upon support; and the different expectations of the care-giver's capabilities across the different sites of care, specifically at home and in nursing homes. It concludes that research and policy attention should focus on how the expectations about the role and abilities of carers are affected by where, and how, care is delivered. In doing so this paper contributes to the emerging health geography literature on care-giving as well as developing the spatial perspective in the established gerontological literature.