From Patient Navigation to Cancer Justice: Toward a Culture-Centered, Community-Owned Intervention Addressing Disparities in Cancer Prevention
From Patient Navigation to Cancer Justice: Toward a Culture-Centered, Community-Owned Intervention Addressing Disparities in Cancer Prevention
复制标题
从患者导航到癌症正义：走向以文化为中心、社区主导的干预措施，解决癌症预防方面的差异
DOI：
--
复制
发表时间：
2017
影响因子：
2.4
通讯作者：
S. Sunderland
中科院分区：
文献类型：
--
作者：
S. Sastry;Heather M. Zoller;Taylor Walker;S. Sunderland
在这项研究中，我们分析了正在进行的学术界合作的数据，该合作旨在概念化和实施癌症预防的患者导航干预措施。与美国的整体趋势相呼应，所研究的地区在癌症结果方面存在显着的社会经济和种族差异。尽管有大量关于在整个癌症护理过程中使用患者导航的研究，但文献中尚不清楚沟通在塑造导航中的作用。为了应对这一差距，我们采用以文化为中心的方法来记录基于社区的“外行”患者导航员的当地知识和文化专业知识如何塑造以非裔美国人为主的患者导航的范围和意义。导航员访谈、导航的参与者观察以及研究团队成员的反思日记等形式的定性数据被用来记录社区导航员如何重新书写导航的定义和范围。虽然导航最初等同于筛查推广，但与社区成员的互动导致了更多以倾听为中心和以结构障碍为中心的患者导航概念的发展。最后，我们讨论本研究的意义、贡献和局限性。
In this study, we analyze data from an ongoing academic-community collaboration targeted at conceptualization and delivery of a patient navigation intervention for cancer prevention. Echoing overall U.S. trends, the region under study is earmarked by significant socioeconomic and racial disparities in cancer outcomes. While there is a large body of research on the use of patient navigation across the continuum of cancer care, the role of communication in shaping navigation is unclear in the literature. Responding to this gap, we use the culture-centered approach to document how community-based “lay” patient navigators’ local knowledge and cultural expertise shaped the scope and meanings of patient navigation for a predominantly African-American population. Qualitative data in the form of navigator interviews, participant observation of navigation, and research team members’ reflexive journals were used to document how the definition and scope of navigation were re-inscribed by community navigators. While navigation was initially equated with screening promotion, interaction with community members led to the development of more listening-focused and structural barrier-focused conceptualization of patient navigation. Finally, we discuss the implications and contributions and limitations of this study.
影响因子：
2.6
作者：
Ma, Grace X.;Shive, Steve;Toubbeh, Jamil I.
通讯作者：
Toubbeh, Jamil I.