Public participation in human genome editing research governance: what do scientists think?
Public participation in human genome editing research governance: what do scientists think?
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DOI：
10.1007/s12687-024-00701-2
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发表时间：
2024-02-14
影响因子：
1.9
通讯作者：
Cadigan，R. Jean
中科院分区：
文献类型：
--
作者：
Waltz，Margaret;Flatt，Michael A.;Cadigan，R. Jean
在人类基因组编辑研究的众多政策和治理建议中，预期的公众参与似乎被普遍认为是一项重要的奋进。然而，目前尚不清楚研究涉及基因组编辑的科学家是否以及如何看到让公众参与基因组编辑研究治理讨论的价值。为了解决这个问题，我们采访了81位在研究中使用基因组编辑的国际科学家。我们的科学家受访者对公众参与的看法占据了从热情支持到强烈怀疑的广泛范围。但大多数科学家的观点都介于两者之间，认为公众参与只是向公众介绍基因组编辑的科学。我们认为，这种立场反映了传统的“知识赤字模型”。除了解决公众参与的操作困难外，许多科学家坚持赤字模型是一个更深层次的障碍，如果公众参与要发生并取得成功，就需要解决这个障碍。
Within the numerous policy and governance recommendations for human genome editing research, anticipatory public engagement seems universally agreed upon as a vital endeavor. Yet it is unclear whether and how scientists whose research involves genome editing see value in engaging the public in discussions of genome editing research governance. To address this question, we interviewed 81 international scientists who use genome editing in their research. The views of our scientist interviewees about public engagement occupied a broad spectrum from enthusiastic support to strong skepticism. But most scientists’ views landed somewhere in the middle, seeing public engagement as merely informing the public about the science of genome editing. We argue that such a stance reflects the traditional “knowledge-deficit model.” Beyond addressing the operational difficulties of public engagement, many scientists’ adherence to the deficit model is a deeper barrier that needs to be addressed if public engagement is to occur and be successful.