Parents of children with cancer: factors influencing their treatment decision making roles.
Parents of children with cancer: factors influencing their treatment decision making roles.
复制标题
DOI：
10.1016/j.pedn.2006.02.005
复制
发表时间：
2006-10-01
期刊：
影响因子：
--
通讯作者：
Degner, Lesley F
中科院分区：
文献类型：
--
作者：
Pyke-Grimm, Kimberly A;Stewart, Janet L;Degner, Lesley F
本研究调查了父母认为影响其在癌症患儿治疗决策（TDM）中的作用的因素。作为一项混合方法研究的一部分，对36名家长的半结构化访谈的定性数据进行了内容分析，揭示了许多与父母的TDM角色相关的主题。经常被确定的因素包括：与医生的关系，沟通的性质，对医生的信任，父母和医生的知识和经验，以及父母角色的重要性。父母们承认对孩子有强烈的责任感和“所有权”感。父母最初缺乏知识和经验，但随着时间的推移，这些知识和经验有助于更积极地参与TDM。
This study examined the factors that parents identified as influencing their role in treatment decision making (TDM) for their child with cancer. Content analysis of qualitative data from semistructured interviews with 36 parents as part of a mixed-methods study revealed numerous themes related to parents' TDM roles. Factors that were frequently identified included: relationship with the physician, nature of communication, trust in the physician, parents' and physician's knowledge and experience, and importance of parental role. Parents acknowledged a strong sense of responsibility and feeling of "ownership" of their child. Parents initially lacked knowledge and experience, but acquiring these over time contributed to a more active participation in TDM.