The impact of preterm birth <37 weeks on parents and families: a cross-sectional study in the 2 years after discharge from the neonatal intensive care unit
The impact of preterm birth <37 weeks on parents and families: a cross-sectional study in the 2 years after discharge from the neonatal intensive care unit
复制标题
DOI：
10.1186/s12955-017-0602-3
复制
发表时间：
2017-02-16
影响因子：
3.6
通讯作者：
Belfort, Mandy B.
中科院分区：
文献类型：
--
作者：
Lakshmanan, Ashwini;Agni, Meghana;Belfort, Mandy B.
背景资料：早产儿从新生儿重症监护室（NICU）出院后，其父母和家庭的生活质量知之甚少。我们的目的是（1）描述早产对父母和家庭的影响，（2）并确定潜在的可改变的父母和家庭impact.Methods的决定因素：我们调查了196名早产儿的父母< 24个月的校正年龄在3个专科诊所（82%的响应率）。主要结局为：（1）对家庭量表总分的影响;（2）婴幼儿生活质量父母情绪和（3）时间限制得分。可能改变的因素是使用社区服务、财政负担和与健康有关的社会问题。我们估计协会的潜在可修改的因素与结果，调整社会人口和婴儿的特点，使用线性regression.Results：中位数（四分位数范围）婴儿胎龄为28（26-31）周。对家庭的影响得分较高（表明对家庭功能的影响更差）与每周无薪休假≥ 3小时、债务增加、财务担忧、不安全的家庭环境和社会孤立有关。较低的父母情绪分数（表明对父母的影响更大）也与社会孤立和无薪休假有关。较低的父母时间限制分数与社会孤立，无薪休假，财务担忧和不安全的家庭环境有关。与此相反，较高的父母时间限制分数（表明影响较小）与早期干预和Medicaid.Conclusions：干预措施，以减少社会隔离，减轻经济负担，提高家庭安全，并增加入学率在早期干预和医疗补助都有可能减少早产对父母和家庭的影响。
Background: Little is known about the quality of life of parents and families of preterm infants after discharge from the neonatal intensive care unit (NICU). Our aims were (1) to describe the impact of preterm birth on parents and families and (2) and to identify potentially modifiable determinants of parent and family impact.Methods: We surveyed 196 parents of preterm infants < 24 months corrected age in 3 specialty clinics (82% response rate). Primary outcomes were: (1) the Impact on Family Scale total score; and (2) the Infant Toddler Quality of Life parent emotion and (3) time limitations scores. Potentially modifiable factors were use of community-based services, financial burdens, and health-related social problems. We estimated associations of potentially modifiable factors with outcomes, adjusting for socio-demographic and infant characteristics using linear regression.Results: Median (inter-quartile range) infant gestational age was 28 (26-31) weeks. Higher Impact on Family scores (indicating worse effects on family functioning) were associated with taking >= 3 unpaid hours/week off from work, increased debt, financial worry, unsafe home environment and social isolation. Lower parent emotion scores (indicating greater impact on the parent) were also associated with social isolation and unpaid time off from work. Lower parent time limitations scores were associated with social isolation, unpaid time off from work, financial worry, and an unsafe home environment. In contrast, higher parent time limitations scores (indicating less impact) were associated with enrollment in early intervention and Medicaid.Conclusions: Interventions to reduce social isolation, lessen financial burden, improve home safety, and increase enrollment in early intervention and Medicaid all have the potential to lessen the impact of preterm birth on parents and families.