Feasibility of conducting qualitative research with persons living with dementia and their caregivers during a home-delivered meals pilot trial.
Feasibility of conducting qualitative research with persons living with dementia and their caregivers during a home-delivered meals pilot trial.
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DOI：
10.1186/s40814-023-01302-5
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发表时间：
2023-04-22
影响因子：
1.7
通讯作者：
Thomas, Kali
中科院分区：
文献类型：
--
作者：
Gadbois, Emily A.;Bunker, Jennifer N.;Hilgeman, Michelle;Shield, Renee;McAuliff, Kathleen E.;Mills, Whitney;Thomas, Kali
关键词：
在老年人中，粮食不安全与健康状况和健康结果不佳有关;痴呆症患者（PLWD）的不安全风险增加。解决居家老年人粮食无保障问题的办法包括两种送餐上门模式：（1）由与客户交往的志愿者或付费司机每天将餐送到参与者家中，或（2）冷冻餐邮寄到参与者家中。研究没有检查这些膳食对艾滋病患者或其照顾者的好处，也没有比较这两种方法在减少粮食不安全方面的有效性。本研究的目的是测试招募和参与PLWD和护理人员的定性研究的过程，以了解背景、实施和影响机制，从而为更大规模的后续研究做好准备。这是一个定性的子研究的试点，多站点，两个手臂务实的可行性试验比较两种模式的膳食交付对养老院安置之间的243 PLWD的效果。在这项子研究中，我们测试了招募和登记程序，并在一部分参与者和护理人员中试用了面试指南。我们招募并采访了9名PLWD和7名护理人员。在测试知情同意过程中，所有参与者都能够同意接受采访，PLWD都表现出同意的能力。我们成功地使用了认知筛选器来获得PLWD的认知障碍评分，并观察到评分表明了广泛的功能。我们的访谈指南成功地提供了有关试点期间送餐的背景、实施和影响机制的信息。除了为未来的试验建立可行性外，通过定性访谈确定的实质性结果还提供了对送餐的背景因素和对送餐类型影响的潜在机制的初步了解，这些因素和机制需要在全面试验中进一步研究。我们的研究结果提供了关键的试点数据，以支持后续试验，以了解如何解决PLWD的粮食不安全问题。ClinicalTrials.gov NCT 04850781 2021年4月20日，追溯注册https://clinicaltrials.gov/ct2/show/NCT04850781在线版本包含补充材料，可通过10.1186/s40814-023-01302-5获得。
Among older adults, food insecurity is associated with poor health status and health outcomes; people living with dementia (PLWD) are at increased risk for insecurity. Approaches to addressing food insecurity among homebound older adults include two modes of home-delivered meals: (1) meals delivered daily to participants’ homes by a volunteer or paid driver who socializes with the client or (2) frozen meals that are mailed to participants’ homes. Research has not examined benefits of these meals for PLWD or their caregivers nor compared the effectiveness of these two approaches in reducing food insecurity. The objective of this study was to test the processes for recruiting and engaging in qualitative research with PLWD and caregivers in an effort to understand the context, implementation, and mechanisms of impact by which relationships between meal delivery and outcomes may be achieved in preparation for a larger, follow-on study. This is a qualitative sub-study of a pilot, multisite, two-arm pragmatic feasibility trial comparing the effect of two modes of meal delivery on nursing home placement among 243 PLWD. In this sub-study, we tested recruitment and enrollment procedures and piloted interview guides among a subset of participants and caregivers. We recruited and conducted interviews with nine PLWD and seven caregivers. In testing the informed consent process, all participants were able to consent to be interviewed, and PLWD all demonstrated capacity to consent. We successfully used a cognitive screener to obtain scores of cognitive impairment for PLWD and observed scores indicating a broad range of function. Our interview guides successfully resulted in information about the context, implementation, and mechanisms of impact for meal delivery during the pilot. In addition to establishing feasibility for the future trial, the substantive findings identified through the qualitative interviews provide an initial understanding of the contextual factors for meal delivery and the potential mechanisms of impact across meal delivery types that warrant further examination in a full-scale trial. Findings from our study provide crucial pilot data to support a follow-on trial to understand how to address food insecurity among PLWD. ClinicalTrials.gov NCT04850781 April 20, 2021, retrospectively registered https://clinicaltrials.gov/ct2/show/NCT04850781 The online version contains supplementary material available at 10.1186/s40814-023-01302-5.
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DOI：
10.1136/bmj.h1258
发表时间：
2015-03-19
期刊：
BMJ (Clinical research ed.)
影响因子：
--
作者：
Moore GF;Audrey S;Barker M;Bond L;Bonell C;Hardeman W;Moore L;O'Cathain A;Tinati T;Wight D;Baird J
通讯作者：
Baird J
影响因子：
4
作者：
de Jager, CA;Budge, MM;Clarke, R
通讯作者：
Clarke, R
影响因子：
6.3
作者：
Largent, Emily A.;Hey, Spencer Phillips;Karlawish, Jason
通讯作者：
Karlawish, Jason
影响因子：
6.3
作者：
Bentvelzen, Adam C.;Crawford, John D.;Kochan, Nicole A.
通讯作者：
Kochan, Nicole A.
影响因子：
7.2
作者：
Frank, Lori;Shubeck, Emily;Epstein-Lubow, Gary
通讯作者：
Epstein-Lubow, Gary