Improving awareness of cancer clinical trials among Hispanic patients and families: audience segmentation decisions for a media intervention.
Improving awareness of cancer clinical trials among Hispanic patients and families: audience segmentation decisions for a media intervention.
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DOI：
10.1080/10810730.2013.768723
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发表时间：
2013
影响因子：
4.4
通讯作者：
Wells KJ
中科院分区：
文献类型：
--
作者：
Quinn GP;McIntyre J;Gonzalez LE;Antonia TM;Antolino P;Wells KJ
临床试验为癌症治疗带来了巨大的希望;然而，西班牙裔癌症患者参与临床试验的比例很低。缺乏对临床试验的认识和了解以及语言障碍可能是参与率低的原因。通过视听材料进行患者教育可以提高西班牙裔人群对临床试验的认识和态度。在这项研究中，佛罗里达和波多黎各的36名西班牙裔癌症患者/幸存者和护理人员参加了焦点小组，以帮助开发旨在增加临床试验知识的西班牙语DVD和小册子干预。焦点小组结果显示：（a）对临床试验的了解程度低，（B）不确定医生为什么期望患者对治疗做出选择，（c）希望家人参与决策。受访者表达了对DVD的不同偏好，例如在DVD中显示大家庭和医生对关键术语的解释。在这些偏好的基础上，作者为DVD开发了一个创造性的简介。西班牙裔社区领袖和主要利益攸关方审查了DVD的内容。最后的DVD是用西班牙语制作的，使用的是西班牙裔患者和医生，其中包含了焦点小组和利益相关者访谈中被认为重要的信息。DVD是完整的配套小册子，目前正在进行随机对照试验。
Clinical trials hold great promise for cancer treatment; yet, Hispanic cancer patients have low rates of clinical trial participation. Lack of awareness and knowledge of clinical trials and language barriers may account for low participation rates. Patient education through audiovisual materials can improve knowledge of and attitudes toward clinical trials among Hispanic populations. In this study, 36 Hispanic cancer patients/survivors and caregivers in Florida and Puerto Rico participated in focus groups to aid in developing a Spanish-language DVD and booklet intervention designed to increase knowledge about clinical trials. Focus group results showed (a) low levels of knowledge about clinical trials, (b) uncertainty about why a physician would expect a patient to make a choice about treatment, and (c) desire for family participation in decision making. Respondents expressed various preferences for aspects of the DVD such as showing extended family in the DVD and physician explanations about key terms. On the basis of these preferences, the authors developed a creative brief for a DVD. The content of the DVD was reviewed by Hispanic community leaders and key stakeholders. A final DVD was created, in Spanish, using Hispanic patients and physicians, which contained the information deemed important from the focus groups and stakeholder interviews. The DVD is complete with companion booklet and currently undergoing a randomized control trial.