Privacy by Design at Population Data BC: a case study describing the technical, administrative, and physical controls for privacy-sensitive secondary use of personal information for research in the public interest
Privacy by Design at Population Data BC: a case study describing the technical, administrative, and physical controls for privacy-sensitive secondary use of personal information for research in the public interest
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DOI：
10.1136/amiajnl-2012-001011
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发表时间：
2013-01-01
影响因子：
6.4
通讯作者：
McGrail, Kimberlyn M.
中科院分区：
文献类型：
--
作者：
Hertzman, Caitlin Pencarrick;Meagher, Nancy;McGrail, Kimberlyn M.
PopData是一家创新的领导者，致力于促进人口健康研究相关数据的获取。来自加拿大各地学术机构的研究人员与PopData合作，为涉及关联行政数据的项目提交数据访问请求，无论是否有自己的研究人员收集的数据。PopData及其开发商--不列颠哥伦比亚省关联健康数据库--已经促进了350多个研究项目，分析了广泛的人口健康问题。PopData将隐私嵌入其运营的各个方面。本案例研究的重点是如何实施隐私设计模型保护隐私，同时支持访问个人层面的数据，以进行公共利益的研究。它探讨了立法，管理和公众认知带来的挑战，并展示了PopData如何实现运营效率和尽职调查。
Population Data BC (PopData) is an innovative leader in facilitating access to linked data for population health research. Researchers from academic institutions across Canada work with PopData to submit data access requests for projects involving linked administrative data, with or without their own researcher-collected data. PopData and its predecessor-the British Columbia Linked Health Database-have facilitated over 350 research projects analyzing a broad spectrum of population health issues. PopData embeds privacy in every aspect of its operations. This case study focuses on how implementing the Privacy by Design model protects privacy while supporting access to individual-level data for research in the public interest. It explores challenges presented by legislation, stewardship, and public perception and demonstrates how PopData achieves both operational efficiencies and due diligence.