Parental perspectives of initial end-of-life care communication
Parental perspectives of initial end-of-life care communication
复制标题
DOI：
10.12968/ijpn.2007.13.11.27587
复制
发表时间：
2007-01-01
影响因子：
1
通讯作者：
Hendricks-Ferguson, Verna L.
中科院分区：
文献类型：
--
作者：
Hendricks-Ferguson, Verna L.
意义：一个重要的研究重点是探索父母对其卫生保健提供者为临终儿童引入临终关怀(EOL)选项的观点。目的：考察父母的观点：(1)卫生保健提供者为其子女引入EOL选项的时机和方法，以及(2)他们对引入EOL选项的选择时间和方法的偏好。设计：回顾性、描述性研究。分析：定性方法，内容分析。结果：回溯性研究设计使父母能够在卫生保健提供者介绍或讨论临终儿童的姑息和临终护理选择时，反思哪些是有益的，哪些是有害的。就何时应与患有危及生命的疾病的儿童的父母讨论这一信息，与会者提出了重要建议。
Significance: An important research priority is to explore parents' perspectives of the introduction of end-of-life care (EOL) options for a dying child by their health care provider.Aims: To examine parents' perspectives of: (1) the timing and method used by health care providers to introduce EOL options for their child and (2) what their preference would have been regarding the selected time and method to introduce EOL options.Design: Retrospective, descriptive study.Analysis: Qualitative method, content analysis.Results: The retrospective study design gave parents the ability to reflect on what was helpful or harmful when health care providers introduce or discuss palliative and end-of-life care options for the dying child. Important suggestions were shared regarding when this information should be discussed with the parents of a child with a life-threatening illness.