General quality of life in youth with type 1 diabetes - Relationship to patient management and diabetes-specific family conflict
General quality of life in youth with type 1 diabetes - Relationship to patient management and diabetes-specific family conflict
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DOI：
10.2337/diacare.26.11.3067
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发表时间：
2003-11-01
期刊：
影响因子：
16.2
通讯作者：
Anderson, BJ
中科院分区：
文献类型：
--
作者：
Laffel, LMB;Connell, A;Anderson, BJ
目的-评估1型糖尿病青少年儿童/青少年总体生活质量的自我报告和父母代理报告，将其反应与一般儿科人群的反应进行比较，并确定糖尿病管理、糖尿病相关家庭行为、和糖尿病特有的家庭冲突与1型糖尿病青年的生活质量。研究参与者包括100名儿童，8-17岁（12.1 +/- 2.3），患有1型糖尿病0.5-6年（2.7 +/- 1.6）。每个孩子和父母都完成了儿科生活质量量表（PedsQL），完成了糖尿病家庭冲突量表，并提供了父母参与糖尿病管理的数据。一个独立的措施，坚持治疗患者的临床医生和血糖控制措施（HbA（1C））进行了评估，也covered.RESULTS - PedsQL反应从青年1型糖尿病是稳定的超过1年，类似的规范从一个健康的标准化样本的PedsQL：总的，身体和心理社会生活质量的三个尺度。在控制了年龄、糖尿病病程、性别、HbA（1c）和家庭参与后，儿童报告的糖尿病特异性家庭冲突（P < 0.01）是儿童报告的生活质量的唯一显著预测因子（模型R-2 = 0.21，P < 0.02）。更多的糖尿病特异性家庭冲突的认可预示着孩子的生活质量下降。由于治疗计划的重点是加强1型糖尿病青少年的血糖控制，干预措施应包括努力减少糖尿病特有的家庭冲突，以保持儿童的整体生活质量。
OBJECTIVE - To evaluate self-report and parent proxy report of child/teen general quality of life in youth with type 1 diabetes, compare their responses with those of a general pediatric population, and identify relationships between diabetes management, diabetes-related family behavior, and diabetes-specific family conflict with quality of life in youth with type 1 diabetes.RESEARCH DESIGN AND METHODS - Study participants included 100 children, 8-17 years of age (12.1 +/- 2.3), with type 1 diabetes for 0.5-6 years (2.7 +/- 1.6). Each child and a parent completed the Pediatric Quality of Life Inventory (PedsQL), completed the Diabetes Family Conflict Scale, and provided data on parent involvement in diabetes management. An independent measure of adherence to treatment assessed by the patient's clinician and a measure of glycemic control (HbA(1c)) were also collected.RESULTS - PedsQL responses from youth with type 1 diabetes were stable over 1 year and similar to norms from a healthy standardization sample for all three scales of the PedsQL: total, physical, and psychosocial quality of life. After controlling for age, duration of diabetes, sex, HbA(1c), and family involvement, child report of diabetes-specific family conflict (P < 0.01) was the only significant predictor of child report of quality of life (model R-2 = 0.21, P < 0.02).CONCLUSIONS - Youth with type 1 diabetes report remarkably similar quality of life to a nondiabetic youth population. Greater endorsement of diabetes-specific family conflict predicted diminished quality of life for the child. As treatment programs focus on intensifying glycemic control in youth with type 1 diabetes, interventions should include efforts to reduce diabetes-specific family conflict in order to preserve the child's overall quality of life.