Towards a sustainable theory of health-related stigma: Lessons from the HIV/AIDS literature

Towards a sustainable theory of health-related stigma: Lessons from the HIV/AIDS literature
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DOI:
10.1002/casp.900
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发表时间:
2006-11-01
影响因子:
2.7
通讯作者:
Deacon, Harriet
Deacon, Harriet
中科院分区:
心理学3区
文献类型:
--
作者:
Deacon, Harriet

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在疾病管理方面,成见已被确定为影响保健和生活质量的主要障碍。但不幸的是,关于污名化没有共同的理论观点。我们需要一个关于健康相关污名的可持续理论。这将从一个连贯一致的成见定义开始,将这一复杂现象的个人和社会层面结合起来。它将重新评估存在的“类型”的耻辱,并解释耻辱如何与不利条件。一个可持续的理论将帮助研究者从理论走向实践:开发一个全面的衡量工具,污名和相关的不利因素,并为反污名干预措施的设计,监测和评估提供信息。本文通过对两篇关于艾滋病污名化的文献综述,介绍了发展可持续污名化理论的几个关键问题。我们建议将污名的定义限制在他者、责备和羞辱的过程中(通常称为象征性污名)。我们认为,有价值的分析分离的耻辱歧视,以更好地了解它们之间的关系。我们还建议,有必要了解的歧视所造成的耻辱,只是一个因素的耻辱相关的劣势。版权所有(c)2006约翰威利父子有限公司。
Stigma has been identified as a major barrier to health care and quality of life in illness management. But unfortunately there is no common theoretical perspective on stigma. We need a sustainable theory of health-related stigma. This would start with a coherent definition of stigma that brings together both individual and social dimensions of this complex phenomenon. It would reassesses the existence of 'types' of stigma and explain how stigma relates to disadvantage. A sustainable theory would help researchers to move from theory into practice: to develop a comprehensive measurement tool for stigma and related disadvantage, and inform design, monitoring and evaluation of anti-stigma interventions. This paper draws on two recent literature reviews on HIV/AIDS stigma to introduce several key issues in developing a sustainable theory of stigma. We suggest limiting the definition of stigma to the process of othering, blaming and shaming (often called symbolic stigma). We argue that there is value in analytically separating stigma from discrimination in order to better understand the relationship between them. We also suggest the need to understand discrimination caused by stigma as only one element of stigma-related disadvantage. Copyright (c) 2006 John Wiley & Sons, Ltd.