Data sharing platforms: instruments to inform and shape science policy on data sharing?
Data sharing platforms: instruments to inform and shape science policy on data sharing?
复制标题
数据共享平台：告知和塑造数据共享科学政策的工具？
DOI：
10.1007/s11192-022-04361-2
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发表时间：
2022-04-09
期刊：
影响因子：
3.9
通讯作者：
Borry, Pascal
中科院分区：
文献类型：
--
作者：
Devriendt, Thijs;Shabani, Mahsa;Borry, Pascal
正在构建数据共享平台，使临床队列数据更易于查找、访问、互操作和重用。它们的主要目的是加强数据共享。然而，在科学文献和政策文件中，缺乏数据共享的激励机制已被概念化为科学政策问题。由于平台只能通过技术手段促进数据共享，因此可能无法完全解决数据共享问题。在本文中，展示了平台的设计如何有助于解决长期数据共享的政策障碍。从本质上讲，平台可以成为政策工具，产生关于数据共享过程和数据访问委员会功能的信息。这使得平台可以用来为科学政策制定提供信息，监测数据共享实践，并指导队列和数据基础设施本身的资金优先次序。通过这种方式，数据基础设施的创建与开放科学背景下的政策演变密切相关。
Data sharing platforms are being constructed to make clinical cohort data more findable, accessible, interoperable, and reusable. Their primary purpose is to enhance the sharing of data. However, the lack of incentives for data sharing has been conceptualized in both scientific literature and policy documents as a problem of science policy. As platforms can only facilitate data sharing through technical means, they may not be able of fully resolving the data sharing problem. In this article, it is shown how the design of platforms may help in addressing policy barriers to data sharing in the long-term. In essence, platforms can be made into policy instruments that generate information on the data sharing process and the functionality of data access committees. This allows platforms to be used to inform science policy development, to monitor data sharing practices and to steer funding prioritization for cohorts and data infrastructures themselves. In this way, the creation of data infrastructures is closely connected to the policy evolutions in the context of open science.