Access to diagnosis, treatment, and supportive services among pharmacotherapy-treated children/adolescents with ADHD in Europe: data from the Caregiver Perspective on Pediatric ADHD survey.
Access to diagnosis, treatment, and supportive services among pharmacotherapy-treated children/adolescents with ADHD in Europe: data from the Caregiver Perspective on Pediatric ADHD survey.
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DOI：
10.2147/ndt.s128752
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发表时间：
2017
影响因子：
3.2
通讯作者：
Chen KS
中科院分区：
文献类型：
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作者：
Fridman M;Banaschewski T;Sikirica V;Quintero J;Chen KS
注意力缺陷/多动障碍 (ADHD) 是最常见的儿童精神疾病之一，会对护理人员的生活产生负面影响。获得护理的障碍、对支持服务的不满以及缺乏护理人员资源等因素可能会导致这种情况。报告护理人员对 ADHD 儿童/青少年进行 ADHD 诊断、行为治疗 (BT) 和支持性护理的经验。照顾者对儿科 ADHD 的看法 (CAPPA) 调查包括来自 10 个欧洲国家目前正在/在过去 6 个月内接受过 ADHD 药物治疗的儿童/青少年（6-17 岁）的照顾者。护理人员报告了获得多动症诊断的经验、获得 BT 的机会、护理人员资源的可用性以及医疗保健/学校支持的水平。报告泛欧盟和特定国家的描述性统计数据；对各国的答复进行了比较。在 3,616 名护理人员中，66% 是女性。儿童/青少年的平均年龄为11.5岁； 80%是男性。从第一次就诊到诊断的平均时间为 10.8（95% 置信区间 10.2、11.3）个月； 31% 的护理人员表示获得多动症诊断的难度最大； 44% 的儿童/青少年没有接受 BT。 47% 的护理人员表示有足够的资源，44% 的护理人员对医疗护理“非常满意”/“满意”，50% 的护理人员认为医疗保健提供者“非常支持”/“有些支持”。 82% 的儿童/青少年就读于主流学校。其中，67% 的看护者认为学校可以为儿童/青少年的多动症提供更多帮助，48% 的看护者获得额外帮助/特殊安排。各国之间的结果差异显着（P<0.001，所有参数）。近三分之一的护理人员报告说，为他们的孩子/青少年获得多动症诊断非常困难，不到一半的人认为有足够的资源，并且发现医疗保健提供者/学校的支持存在差距。研究结果强调，需要改善诊断和提供支持服务的机会，以提高护理标准，并有可能减少儿童/青少年多动症对护理人员生活的影响。
Attention-deficit/hyperactivity disorder (ADHD) is one of the most common childhood psychiatric disorders and negatively impacts caregivers’ lives. Factors including barriers to accessing care, dissatisfaction with support services, and lack of caregiver resources may contribute to this. To report caregivers’ experiences of ADHD diagnosis, behavioral therapy (BT), and supportive care for children/adolescents with ADHD. The Caregiver Perspective on Pediatric ADHD (CAPPA) survey included caregivers of children/adolescents (6–17 years) from ten European countries who were currently receiving/had received ADHD pharmacotherapy in the previous 6 months. Caregivers reported experiences of obtaining an ADHD diagnosis, access to BT, availability of caregiver resources, and level of health care/school support. Pan-EU and country-specific descriptive statistics are reported; responses were compared across countries. Of 3,616 caregivers, 66% were female. Mean age of children/adolescents was 11.5 years; 80% were male. Mean time from the first doctor visit to diagnosis was 10.8 (95% confidence interval 10.2, 11.3) months; 31% of caregivers reported the greatest degrees of difficulty in obtaining an ADHD diagnosis; 44% of children/adolescents did not receive BT. Forty-seven percent of caregivers reported that sufficient resources were available, 44% were “very satisfied”/“satisfied” with medical care, and 50% found health care providers “very supportive”/“somewhat supportive”. Mainstream schools were attended by 82% of children/adolescents. Of those, 67% of caregivers thought schools could help more with the child/adolescent’s ADHD and 48% received extra help/special arrangement. Results varied significantly between countries (P<0.001, all parameters). Almost a third of caregivers reported a high degree of difficulty in obtaining an ADHD diagnosis for their child/adolescent, less than half felt that sufficient resources were available, and gaps in support from health care providers/schools were identified. Findings underscore the need to improve access to diagnosis and provision of supportive services to enable better standards of care, and potentially reduce the impact of child/adolescent ADHD on caregivers’ lives.