"That's True Love:" Lived Experiences of Puerto Rican Perinatally HIV-Infected Youth within Their Families' Context.
"That's True Love:" Lived Experiences of Puerto Rican Perinatally HIV-Infected Youth within Their Families' Context.
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DOI：
10.3390/ijerph13010007
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发表时间：
2015-12-22
影响因子：
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通讯作者：
Zorrilla CD
中科院分区：
文献类型：
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作者：
Silva-Suárez G;Bastida E;Rabionet SE;Beck-Sagué C;Febo I;Zorrilla CD
艾滋病毒的负担不仅影响到艾滋病毒感染者，而且影响到他们的家人和照顾者。众所周知，家庭支持对艾滋病毒感染者至关重要。进行了一项定性研究，探讨生活经验，在家庭环境中，围产期艾滋病毒感染（pHIV-I）的青年在波多黎各。进行了20次深入访谈并进行了录音。在家庭背景下，研究参与者经历了接受，爱和支持，但也有耻辱和歧视。他们报告说，家庭是他们生活和治疗的重要组成部分。年轻时失去父母一方或双方被认为比感染艾滋病毒更困难。大多数失去父母的参与者与其他家庭成员住在一起。这对感染艾滋病毒的青年及其照顾者来说都是一个挑战。参与者将他们的医疗保健提供者描述为他们家庭的一部分，并希望在他们过渡到成人护理时保持联系。尽管面临挑战，但与会者表达了想要孩子的愿望。针对这一人群的服务应强调社会支持，将家庭成员纳入医疗过程，在向成人护理过渡时提供特别指导和支持，并向他们提供有关艾滋病毒和生殖选择的最新信息。
The burden of HIV affects not only HIV-infected patients but also their families and caregivers. It is also known that family support is crucial for people living with HIV. A qualitative study was conducted to explore the life experiences, within the family context, of perinatally HIV-infected (pHIV-I) youth in Puerto Rico. Twenty in-depth interviews were performed and audio-recorded. Within the family context, study participants experienced acceptance, love and support but also stigma and discrimination. They reported that family is an essential component in their lives and treatment. Losing one or both parents at a young age was considered more difficult than having HIV. Most participants who lost their parents lived with other family members. This was a challenging situation for both pHIV-I youth and their caregivers. Participants described their healthcare providers as part of their families and would like to keep in touch as they transition to adult care. Despite the challenges, participants expressed a desire to have children. Services targeted to this population should stress social support, incorporate family members into the medical process, provide special guidance and support while transitioning to adult care, and provide them with the latest information regarding HIV and reproductive options.