Qualitative Exploration Toward the Development of a Parent-Rated Scale for Insomnia in Children with Autism Spectrum Disorder.
Qualitative Exploration Toward the Development of a Parent-Rated Scale for Insomnia in Children with Autism Spectrum Disorder.
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对开发自闭症谱系障碍儿童失眠家长评定量表的定性探索。
DOI：
10.1007/s10803-022-05865-9
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发表时间：
2023
影响因子：
3.9
通讯作者：
Scahill,L
中科院分区：
文献类型：
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作者：
Sinha,C;Lecavalier,L;Johnson,CR;Taylor,C;Mulligan,A;Buckley,D;Alder,ML;Scahill,L
为了制定新的失眠家长评级，这项多地点定性研究探讨了自闭症谱系障碍 (ASD) 儿童及其家庭的睡眠问题和相关影响。为了确保测量内容的有效性，我们对 24 名自闭症谱系障碍儿童（年龄 3 至 18 岁）的照顾者（N = 25）进行了 6 个焦点小组讨论。根据家长报告，所有儿童都有轻度或重度失眠史。焦点小组的记录经过系统编码，以确定主要主题。管理员的逐字评论被用来生成 134 个候选项目。研究团队和专家小组进一步审查，随后对 12 名家长进行个人认知访谈，将项目库减少到 40 个。焦点小组记录的主题分析确定了 7 类：(1) 入睡困难； (2) 难以入睡； (3) 清晨起床； (4) 就寝时间； （5）家长的就寝时间管理策略； （6）睡眠问题对孩子的影响； (7)睡眠问题对家庭的影响。 40 题版本的 Flesch Kincaid 年级水平为 7.2（七年级阅读水平）。自闭症谱系障碍 (ASD) 儿童的失眠与一般儿科人群的失眠具有共同特征。然而，也许由于自闭症特征，如坚持千篇一律、感觉敏感、沟通障碍等，自闭症儿童的失眠似乎有独特的行为表现。 40 个项目库的内容有效性和项目清晰度得到了专家小组评审和对自闭症谱系障碍儿童照顾者的认知访谈的支持。
Toward the development of a new parent-rating for insomnia, this multi-site qualitative study explored sleep problems and related impacts in children with autism spectrum disorder (ASD) and their families. To ensure content validity of the measure, we conducted six focus groups with caregivers (N = 25) of 24 children (age 3 to 18 years) with ASD. Based on parent report, all children had a history of mild or greater insomnia. The focus group transcripts were systematically coded to identify major themes. Verbatim comments from caretakers were used to generate 134 candidate items. Further review by the research team and an expert panel followed by individual cognitive interviews with 12 parents reduced the item bank to 40. The thematic analysis of focus group transcripts identified 7 categories: (1) Trouble falling asleep; (2) trouble staying asleep; (3) early morning waking; (4) bedtime routines; (5) parental strategies for bedtime management; (6) impact of sleep problems on the child; and (7) impact of sleep problems on the family. The Flesch Kincaid Grade Level of the 40-item version was 7.2 (seventh grade reading level). Insomnia in children with ASD shares features in common with insomnia in the general pediatric population. However, perhaps owing to autistic features such as insistence on sameness, sensory sensitivities, communication impairments, insomnia in children with ASD appears to have unique behavioral manifestations. Content validity and item clarity of the 40-item bank were supported by expert panel review and cognitive interviews with caregivers of children with ASD.