Data Centre Profile: The Provincial Health Data Centre of the Western Cape Province, South Africa.
Data Centre Profile: The Provincial Health Data Centre of the Western Cape Province, South Africa.
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DOI：
10.23889/ijpds.v4i2.1143
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发表时间：
2019-11-20
影响因子：
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通讯作者：
Vallabhjee, K
中科院分区：
文献类型：
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作者：
Boulle, A;Heekes, A;Vallabhjee, K
简介：西开普省卫生数据中心（PHDC）整合了政府服务中的个人层面的临床数据，利用对患者登记系统的持续投资、唯一标识符以及行政和临床数字卫生系统的成熟。PHDC通过临床医生的工具直接支持临床护理，这些工具整合患者数据或识别需要干预的患者，方法：PHDC完全设在政府内部。数据通常每天从一系列源系统中处理，通过不同的协调和管理，简化和报告流程。链接主要通过唯一标识符来实现，该标识符可作为一个普遍的文件夹编号，并由其他标识符加以扩充。进一步的数据处理包括对用于列举健康状况的多个数据源进行三角测量，为每个列举分配确定性水平。产出包括患者特定的电子邮件警报、基于网络的综合患者临床查看平台、具有特定条件和相关特征和结果的患者的可过滤行列表、管理报告和仪表板，以及响应运营和研究数据请求的数据发布。严格的建筑，行政和治理流程，确保隐私protection.Results：在过去的十年中，800万独特的人被记录为寻求医疗保健在省级公共部门的卫生服务，目前的利用率在1500万出席或入院一年。健康状况的横断面统计包括430 000多人感染艾滋病毒，500 000人患有高血压，235 000人患有糖尿病。每年有110 000名孕妇和54 000名结核病患者被点算。每年处理超过50个数据请求的内部和外部请求者按照数据请求和发布governance processes.CONCLUSIONS：在西开普省的个人层面的健康数据的单一整合环境创造了新的机会，为支持病人护理，同时提高周围的访问和释放敏感的病人数据的治理。
INTRODUCTION: The Western Cape Provincial Health Data Centre (PHDC) consolidates person-level clinical data across government services, leveraging sustained investments in patient registration systems, a unique identifier, and maturation of administrative and clinical digital health systems.OBJECTIVES: The PHDC supports clinical care directly through tools for clinicians which integrate patient data or identify patients in need of interventions, and indirectly through supporting operational and epidemiological analyses.METHODS: The PHDC is housed entirely within government. Data are processed from a range of source systems, usually daily, through distinct harmonisation and curation, beneficiation, and reporting processes. Linkage is predominantly through the unique identifier which doubles as a pervasive folder number, augmented by other identifiers. Further data processing includes triangulation of multiple data sources for enumerating health conditions, with assignment of certainty levels for each enumeration. Outputs include patient-specific email alerts, a web-based consolidated patient clinical viewing platform, filterable line-listings of patients with specific conditions and associated characteristics and outcomes, management reports and dashboards, and data releases in response to operational and research data requests. Strict architectural, administrative and governance processes ensure privacy protection.RESULTS: In the past decade 8 million unique people are recorded as having sought healthcare in the provincial public sector health services, with current utilisation at 15 million attendances or admissions a year. Cross-sectional enumeration of health conditions includes over 430 000 people with HIV, 500 000 with hypertension, 235 000 with diabetes. Annually 110 000 pregnancies and 54 000 patients with tuberculosis are enumerated. Over 50 data requests are processed each year for internal and external requesters in accordance with data request and release governance processes.CONCLUSIONS: The single consolidated environment for person-level health data in the Western Cape has created new opportunities for supporting patient care, while improving the governance around access to and release of sensitive patient data.