Physical and mental health impact of Stevens-Johnson syndrome/toxic epidermal necrolysis and post-hospital discharge care: Identifying practice gaps.
Physical and mental health impact of Stevens-Johnson syndrome/toxic epidermal necrolysis and post-hospital discharge care: Identifying practice gaps.
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DOI：
10.1016/j.jdin.2023.01.012
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发表时间：
2023-06
影响因子：
--
通讯作者：
Micheletti, Robert G.
中科院分区：
文献类型：
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作者：
Coromilas, Alexandra J.;Divito, Sherrie J.;Phillips, Elizabeth J.;Micheletti, Robert G.
关键词：
致编辑：Stevens-Johnson综合征/中毒性表皮坏死松解症（SJS/TEN）是一种药物引起的皮疹，可引起急性和长期的健康并发症。对诊断为SJS/TEN的成年人进行的一项调查显示，长期的身心健康后遗症很常见。1实践差距的识别为改善护理提供了机会。我们评估了患者对SJS/TEN和住院后护理的健康影响的看法。这项调查研究包括作为SJS/TEN幸存者或家庭成员注册参加虚拟SJS/TEN 2021会议的成年人。通过电子邮件联系潜在参与者，并以去识别方式使用研究电子数据采集以电子方式完成调查。被确定为家庭成员或儿童的参与者被排除在外。这项研究得到了宾夕法尼亚大学机构审查委员会的批准。
To the Editor: Stevens-Johnson syndrome/toxic epidermal necrolysis (SJS/TEN) is a drug-induced eruption that causes acute and long-term health complications. A survey of adults diagnosed with SJS/TEN showed that long-term physical and mental health sequelae are common. 1 Identification of practice gaps provides opportunity for improving care. We evaluated patient perspectives on the health impact of SJS/TEN and posthospital care. This survey study included adults who registered for the virtual SJS/TEN 2021 Meeting as an SJS/TEN survivor or family member. Potential participants were contacted by email and completed the survey electronically using Research Electronic Data Capture in a deidentified manner. Participants who identified as a family member or a child were excluded. This study was approved by the Institutional Review Board of the University of Pennsylvania.
影响因子：
10.9
作者：
Hoffman, Melissa;Chansky, Peter B.;Micheletti, Robert G.
通讯作者：
Micheletti, Robert G.