Mobility, Assistive Technology Use, and Social Integration Among Adults with Spina Bifida
Mobility, Assistive Technology Use, and Social Integration Among Adults with Spina Bifida
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DOI：
10.1097/phm.0b013e3181aa41d4
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发表时间：
2009-07-01
影响因子：
3
通讯作者：
Lee, Shannon
中科院分区：
文献类型：
--
作者：
Dicianno, Brad E.;Gaines, Anna;Lee, Shannon
目的：许多脊柱裂患者都有限制活动和功能独立的障碍。久坐不动的生活方式和与社会隔绝的现象非常普遍。本研究评估之间的关联使用的移动设备和程度socialization.Design：一个回顾性的图表审查进行了208名成年人脊柱裂参加一所大学为基础的诊所。收集的数据包括克雷格残疾评估报告技术简表，贝克抑郁量表，以及轮椅和其他辅助技术使用的数据。我们假设，社区和家庭的流动性和社会融合，如克雷格残疾评估报告技术-简表，将低于手动和电动轮椅使用者比步行者，无论抑郁症评分或分流的历史。结果：我们发现使用手动和电动轮椅的脊柱裂患者的日常家庭和社区活动水平低于使用步行机的患者，但是，大多数脊柱裂患者的社会融合和经济自给自足得分很低，无论他们是否能够走动或使用轮椅。这些发现不能用轮椅质量来解释，因为大多数都是高质量的设备。抑郁症的高患病率也被发现。结论：轮椅提供的特殊考虑进行了讨论。需要进行更多的研究，以查明社会融合的其他障碍。
Objective: Many individuals with spina bifida have impairments that limit mobility and functional independence. Sedentary lifestyles and social isolation are very prevalent. This study evaluated the association between the use of mobility devices and degree of socialization.Design: A retrospective chart review was performed on 208 adults with spina bifida attending a university-based clinic. Data collected included the Craig Handicap Assessment Reporting Technique-Short Form, Beck Depression Inventory, and data on wheelchair and other assistive technology use. We hypothesized that community and home mobility and social Integration, as measured by the Craig Handicap Assessment Reporting Technique-Short Form, would be lower for manual and power wheelchair users than for ambulators, regardless of depression scores or shunt history.Results: We found that individuals with spina bifida who used both manual and power wheelchairs do have lower daily home and community activity levels compared with ambulators, but that most individuals with spina bifida have low social integration and economic self-sufficiency scores, regardless of whether they can ambulate or use wheelchairs. These findings were not explained by wheelchair quality because most were prescribed high-quality devices. A high prevalence of depression was also found.Conclusions: Special considerations for wheelchair provision are discussed. Additional research is needed to identify other barriers to social integration.