Patient Perspective on Outcomes in Rheumatology - A Position Paper for OMERACT 9
Patient Perspective on Outcomes in Rheumatology - A Position Paper for OMERACT 9
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DOI：
10.3899/jrheum.090359
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发表时间：
2009-09-01
影响因子：
3.9
通讯作者：
Wells, George A.
中科院分区：
文献类型：
--
作者：
Kirwan, John R.;Newman, Stanton;Wells, George A.
OMERACT 纳入患者参与者后，将患者的观点直接纳入风湿病结果评估的制定中。所有研究都将疲劳作为推荐的衡量标准，目前正在进行进一步的工作，以评估睡眠、有效的医疗保健消费者以及心理或教育干预的效果。本立场文件汇集了这项工作，为 OMERACT 9 的患者观点研讨会做准备，并介绍了这样的概念：在评估旨在帮助患者与疾病共存的干预措施时，可能需要与患者相关的其他核心成果。 （风湿病杂志 2009；36：2067-70；doi：10.3899/jrheum.090359）
The inclusion of patient participants at OMERACT has resulted in direct incorporation of the patient perspective in the development of outcome assessments in rheumatology. Fatigue has been adopted as a recommended measure in all studies, and further work is now under way oil the assessment of sleep, effective healthcare consumers, and the effects of psychological or educational interventions. This position paper draws this work together in preparation for the Patient Perspective Workshop at OMERACT 9, and introduces the concept that other core Outcomes relevant to patients might be required in assessing interventions designed to help patients live with their disease. (J Rheumatol 2009;36:2067-70; doi:10.3899/jrheum.090359)