Unmet Needs of Patients with Parkinson's Disease: Interview Survey of Patients and Caregivers
Unmet Needs of Patients with Parkinson's Disease: Interview Survey of Patients and Caregivers
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DOI：
10.1177/147323000903700315
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发表时间：
2009-05-01
影响因子：
1.6
通讯作者：
Hattori, N.
中科院分区：
文献类型：
--
作者：
Hatano, T.;Kubo, S-I;Hattori, N.
我们对132名帕金森病（PD）患者进行了一项20项基于问卷的访谈，其中81名患者为Hoehn & Yahr（H&Y）I - III期PD，51名患者为H&Y IV - V期PD的护理人员，以评估患者和护理人员对PD治疗的满意度。调查显示，PD患者经常出现非运动症状，抗帕金森病药物不能充分缓解这些症状。此外，PD患者希望他们的医生倾听他们的意见，认真对待他们的担忧，全面解释他们的疾病，并提供有关PD及其治疗的最新信息。病人和照顾者都同意对未来的焦虑，沟通困难，和他们不同的运动速度，但是，有差异，他们的相对看法的各个方面的日常护理。评价显示，PD患者在治疗和护理标准方面的需求未得到满足。本研究强调的未来改进领域包括：开发更好的运动症状治疗方法，开发新的非运动症状治疗方法，以及改善患者和医生之间的双向沟通。
We performed a 20-item questionnaire-based interview of 132 patients with Parkinson's disease (PD): 81 patients with Hoehn & Yahr (H&Y) stage I - III PD, and 51 caregivers of patients with H&Y stage IV - V PD, to evaluate patient and caregiver satisfaction with PD treatment. The survey revealed that PD patients often experience non-motor symptoms, which are not adequately alleviated by antiparkinsonian agents. Furthermore, PD patients want their physicians to listen to them and take their concerns seriously, to explain their disease comprehensively, and to provide the latest information on PD and its treatment. Both patients and caregivers agreed on anxiety toward the future, communication difficulties, and their different movement pace; however, there were differences in their relative perceptions of various aspects of daily care. The evaluation revealed that PD patients have unmet needs in their treatment and standards of care. Areas for future improvement as highlighted in this study include: the development of better treatment for motor symptoms, the development of new treatments for non-motor symptoms and improved two-way communication between patient and physician.