The early intervention message: perspectives of parents of children with autism spectrum disorder
The early intervention message: perspectives of parents of children with autism spectrum disorder
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DOI：
10.1111/cch.12428
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发表时间：
2017-03-01
影响因子：
1.9
通讯作者：
MacDougall, C.
中科院分区：
文献类型：
--
作者：
Edwards, A.;Brebner, C.;MacDougall, C.
研究背景有充分的证据表明早期干预（EI）可以改善自闭症谱系障碍（ASD）儿童的预后，因此，EI的重要性已被广泛宣传到ASD儿童的家庭。然而，自闭症儿童的父母的观点，关于EI messages.Methods没有得到广泛的检查本研究采用定性的方法，探讨父母的观点上的EI messages. Methods。半结构式访谈进行了14名参与者从12个家庭单位，探讨自闭症儿童的父母的观点上的EI信息。主题分析进行了data.Results三个中心主题的数据分析：（一）父母的初步看法，EI后，他们的孩子的诊断ASD;（二）的后果（积极和消极）的EI消息;和（iii）父母的观点对生活后EI。这项研究的结果表明，父母敏锐地意识到了EI的重要性，虽然这为父母提供了希望，立即诊断后，它也把压力的父母决策有关的干预方法，以访问他们的孩子与ASD。结论这项研究的结果突出了重要性，仔细考虑如何健康的信息，特别是EI的重要性，被传达给自闭症儿童的家庭。此外，本研究的结果还强调了专职医疗人员需要与家长就EI计划的预期结果进行公开沟通。
Background There is strong evidence that early intervention (EI) can improve outcomes for children with autism spectrum disorder (ASD), and consequently, the importance of EI has been widely promoted to families of children with ASD. However, the perspectives of parents of children with ASD regarding the EI message have not been widely examined.Methods This study used qualitative methods to explore parental perspectives on the EI message. Semi-structured interviews were undertaken with 14 participants from 12 family units to explore the perspectives of parents of children with ASD on the EI message. Thematic analysis was undertaken on the data.Results Three central themes were constructed following data analysis: (i) parents' initial perceptions of EI following their child's diagnosis with ASD; (ii) the consequences (both positive and negative) of the EI message; and (iii) parents' perspectives on life after EI. The results of this study indicated that parents were acutely aware of the importance of EI, and although this provided parents with hope immediately post-diagnosis, it also placed pressure on parental decision-making regarding which intervention approaches to access for their children with ASD.Conclusions The results of this study highlight the importance of carefully considering how health messages, specifically the importance of EI, are communicated to families of children with ASD. Furthermore, the findings of this study also highlight the need for allied health professionals to communicate openly with parents about the anticipated outcomes of EI programmes.