Mobility in pictures: a participatory photovoice narrative study exploring powered mobility provision for children and families
Mobility in pictures: a participatory photovoice narrative study exploring powered mobility provision for children and families
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DOI：
10.1080/17483107.2018.1447606
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发表时间：
2019-01-01
影响因子：
2.2
通讯作者：
Galloway, James C.
中科院分区：
文献类型：
--
作者：
Feldner, Heather A.;Logan, Samuel W.;Galloway, James C.
目的：康复专业人员越来越认识到行动能力是一项基本人权，并认可行动障碍儿童早期动力行动的功效，以培养独立性，促进与同龄人的社会交往，并促进参与家庭和社区生活。然而，从行动不便儿童及其家庭的生活经历来看，行动不便与技术提供之间的关系是复杂的，而且研究不足。从儿童自己的角度对这些经历的看法特别有限，在描述这些经历时使用参与性研究方法也是如此。本研究的目的是使儿童和家庭成为共同研究者，调查他们的经验和观点的动力移动提供过程和早期使用他们的移动技术在他们自己的话和图像。方法：在一个主要的中西部大都市地区的两个家庭-一个谁是接收电动轮椅和一个谁是接收修改后的电动乘坐玩具车-参加了共同-研究人员从2015年至2016年，记录他们的经验与研究相机和叙述他们的照片，以描述有意义的或重要的方面，他们各自的动力移动提供过程和早期使用他们的设备。结果：四个主题出现：（1）Dys/功能的移动技术;（2）日常生活，游戏和参与;（3）新兴的自我/宣传和（4）复杂的家庭/行业的相互作用。结论：这些主题和经验可能会进一步创新的动力移动的做法，产生新的假设的作用，技术在塑造残疾身份和展示的可行性和影响，更广泛地使用参与性的方法在康复研究。
Aim: Rehabilitation professionals are increasingly recognizing mobility as a basic human right and endorsing the efficacy of early powered mobility for children with mobility impairments to foster independence, promote socialization with peers and facilitate participation in family and community life. However, the relationship between mobility and technology provision, when considered in the context of lived experiences of children with mobility impairments and their families, is complex and understudied. Perceptions of these experiences from children's own points of view are especially limited, as is the use of participatory research methods in describing these experiences. The purpose of this study was to empower children and families as co-researchers, investigating their experiences and perspectives of powered mobility provision processes and early use of their mobility technology in their own words and images.Methods: Two families in a major Midwest metropolitan area- one who was receiving a powered wheelchair and one who was receiving a modified powered ride-on toy car- participated as co-researchers from 2015-2016, documenting their experiences with a research camera and narrating their photos to describe meaningful or important aspects of their respective powered mobility provision processes and early use of their devices.Results: Four themes emerged: (1) Dys/Function of Mobility Technology; (2) Daily Life, Play and Participation; (3) Emerging Self/Advocacy and (4) Complex Family/Industry Interplay.Conclusions: These themes and experiences may inform further innovation in powered mobility practices, generate new hypotheses about the role of technology in shaping disability identity and demonstrate the feasibility and impact of using participatory methods more broadly in rehabilitation research.