Sexual functioning along the cancer continuum: focus group results from the Patient-Reported Outcomes Measurement Information System (PROMIS®)
Sexual functioning along the cancer continuum: focus group results from the Patient-Reported Outcomes Measurement Information System (PROMIS®)
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DOI：
10.1002/pon.1738
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发表时间：
2011-04-01
期刊：
影响因子：
3.6
通讯作者：
Weinfurt, Kevin P.
中科院分区：
文献类型：
--
作者：
Flynn, Kathryn E.;Jeffery, Diana D.;Weinfurt, Kevin P.
目的：癌症和癌症治疗影响性功能和亲密关系的特定方面;然而，在不同的癌症人群中进行了有限的定性工作。作为努力提高自我报告的性功能的测量的一部分，我们探讨了范围和重要性的性功能和亲密关系的患者在癌症部位和沿着连续的care.Methods：我们进行了16个诊断和性别特异性的焦点小组与患者招募的杜克大学肿瘤登记处和肿瘤学/血液学诊所（N=109）。一名经过培训的记录员编写了现场记录，对讨论进行了总结。一名独立审计员对照书面记录核实了实地记录。讨论的内容进行了分析的主要主题由两个独立的coders.Results：在所有癌症，最常讨论的癌症或治疗相关的影响性功能和亲密关系的疲劳，治疗相关的脱发，体重增加和器官损失或疤痕。其他障碍是特定诊断所特有的，例如肺癌的呼吸短促、结直肠癌的胃肠道问题和前列腺癌的尿失禁。性功能和亲密被认为对生活质量很重要。虽然大多数癌症的影响被认为是负面的，许多参与者确定癌症后的亲密关系的改善。结论：性生活满意度的总体评价并不总是对应于功能的具体方面（e。G.勃起功能障碍），这对旨在测量性功能作为结果的研究人员提出了挑战。卫生保健提供者不应该假设性功能障碍的程度决定性满意度，而应该直接探讨癌症患者的性问题。版权所有（C）2010约翰威利父子有限公司
Objective: Cancer and treatments for cancer affect specific aspects of sexual functioning and intimacy; however, limited qualitative work has been done in diverse cancer populations. As part of an effort to improve measurement of self-reported sexual functioning, we explored the scope and importance of sexual functioning and intimacy to patients across cancer sites and along the continuum of care.Methods: We conducted 16 diagnosis- and sex-specific focus groups with patients recruited from the Duke University tumor registry and oncology/hematology clinics (N=109). A trained note taker produced field notes summarizing the discussions. An independent auditor verified field notes against written transcripts. The content of the discussions was analyzed for major themes by two independent coders.Results: Across all cancers, the most commonly discussed cancer-or treatment-related effects on sexual functioning and intimacy were fatigue, treatment-related hair loss, weight gain and organ loss or scarring. Additional barriers were unique to particular diagnoses, such as shortness of breath in lung cancer, gastrointestinal problems in colorectal cancers and incontinence in prostate cancer. Sexual functioning and intimacy were considered important to quality of life. While most effects of cancer were considered negative, many participants identified improvements to intimacy after cancer.Conclusion: Overall evaluations of satisfaction with sex life did not always correspond to specific aspects of functioning ( e. g. erectile dysfunction), presenting a challenge to researchers aiming to measure sexual functioning as an outcome. Health-care providers should not assume that level of sexual impairment determines sexual satisfaction and should explore cancer patients' sexual concerns directly. Copyright (C) 2010 John Wiley & Sons, Ltd.