The Experience of Living With Dementia in Residential Care: An Interpretative Phenomenological Analysis
The Experience of Living With Dementia in Residential Care: An Interpretative Phenomenological Analysis
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DOI：
10.1093/geront/48.6.711
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发表时间：
2008-12-01
期刊：
影响因子：
5.7
通讯作者：
Downs, Murna
中科院分区：
文献类型：
--
作者：
Clare, Linda;Rowlands, Julia;Downs, Murna
目的：对居住在寄宿护理中的中度至重度痴呆患者的主观心理体验了解不足。在本研究中，我们的目的是探讨生活的主观经验，从老年痴呆症患者的角度来看，在住宅照顾，并了解在这种情况下的心理影响。设计与方法：这是一项探索性的定性研究。80名居住在养老院的痴呆症患者与研究人员进行了非结构化的对话。我们对由此产生的304次对话的记录进行了解释性现象学分析，以建立一个主题账户。结果如下：老年痴呆症患者在住宿护理中的生活经历基本上是经历与损失，孤立，不确定性，恐惧和无意识有关的困难和痛苦情绪之一。参与者通常试图通过接受和充分利用事物并肯定他们过去的自我意识和身份来科普，但有些人也表达了沮丧和愤怒。含义：参与者能够描述他们的情况和他们对它的情绪反应，基于强烈的自我和身份感。参与者的经验强调改善老年痴呆症患者在住宿护理环境中的生活状况的重要性。
Purpose: The subjective psychological experience of people with moderate to severe dementia living in residential care is insufficiently understood. In the present study we aimed to explore the subjective experience of life with dementia in residential care from the perspective of the person with dementia, and to understand the psychological impact of being in this situation. Design and Methods: This was an exploratory qualitative study. Eighty individuals with dementia who were living in residential care homes engaged in unstructured conversations with a researcher. We subjected the transcripts of the resultant 304 conversations to interpretative phenomenological analysis in order to develop a thematic account. Results: The experience of living with dementia in residential care was fundamentally one of experiencing difficult and distressing emotions relating to loss, isolation, uncertainty, fear, and a sense of worthlessness. Participants generally tried to cope by accepting and making the best of things and affirming their past sense of self and identity, but some also expressed frustration and anger. Implications: Participants were able to describe aspects of their situation and their emotional response to it, grounded in a strong retained sense of self and identity. The participants' experience emphasizes the importance of improving the living situation of elders with dementia in residential care settings.