Linking maternity data for England, 2005-06: methods and data quality.
Linking maternity data for England, 2005-06: methods and data quality.
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DOI：
10.1057/hsq.2011.3
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发表时间：
2011-01-01
期刊：
影响因子：
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通讯作者：
Macfarlane, Alison
中科院分区：
文献类型：
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作者：
Dattani, Nirupa;Datta-Nemdharry, Preeti;Macfarlane, Alison
简介：产科医院事件统计（HES）数据与出生登记和婴儿NHS编号（NN 4 B）数据相关联，以汇集一些在国家层面无法获得的关键人口统计和临床数据项。该项目增加了早期的工作，涉及出生登记记录的链接到NN 4 B records.METHODS：出生登记和NN 4 B记录被链接到产妇HES分娩记录，也产妇HES婴儿记录使用NHS号码或其他间接标识符，如果NHS号码missing.Data质量和完整性的产妇HES出生登记数据进行了评估。对于注册时未收集的信息，使用NN 4 B数据验证Maternity HES的质量。总体而言，91%的产妇保健服务分娩记录可以与出生登记/婴儿保健服务号码记录相关联，84%的产妇保健服务婴儿记录相关联。2005年，只有3%的产妇保健服务记录缺少母亲的国民保健服务号码。相比之下，NN 4 B数据集的比例为30%。这并未反映出产科HES数据项缺失或不一致的程度。超过四分之一的单胎婴儿的所有链接的产妇HES记录有一个或多个以下数据项缺失：出生体重，胎龄，出生状态，性别和婴儿的出生日期。另一方面，对于单胎婴儿的出生体重、出生状态和性别等信息，孕产妇HES和关联出生登记和NN 4 B数据之间的一致性良好。虽然NN 4 B记录了母亲定义的婴儿种族类别，孕产妇HES记录了母亲的种族类别，但87%的关联记录具有相同的种族群体。结论：尽管取得了良好的联系率，但在联系2007年的数据之前，将简化所使用的方法。为了在今后几年中从这种联系中获得最大的利益，迫切需要提高《产妇保健和卫生调查》中所载数据的质量和完整性。
INTRODUCTION: Maternity Hospital Episode Statistics (HES) data were linked to birth registration and NHS Numbers for Babies (NN4B) data to bring together some key demographic and clinical data items not otherwise available at a national level. This project added to earlier work involving linkage of birth registration records to NN4B records.METHODS: Birth registration and NN4B records were linked to Maternity HES delivery records and also Maternity HES baby records using the NHS Number or other indirect identifiers if NHS Number was missing.Data quality and completeness of Maternity HES were assessed in relation to birth registration data wherever possible. For information not collected at registration, NN4B data were used to validate quality of Maternity HES.RESULTS: Overall, 91 per cent of Maternity HES delivery records could be linked to the birth registration/NHS Numbers for Babies records and 84 per cent of Maternity HES baby records were linked.In 2005 only 3 per cent of Maternity HES records had mother's NHS number missing, compared with 30 per cent in the NN4B dataset. This did not reflect the extent to which Maternity HES data items were missing or discordant. Over a quarter of all linked Maternity HES records for singleton babies had one or more of the following data items missing: birthweight, gestational age, birth status, sex, and date of birth of the baby. On the other hand, for data items where information was stated such as birthweight, birth status, and sex for singleton babies, there was good agreement between Maternity HES and linked birth registration and NN4B data.Although NN4B records the ethnic category of the baby as defined by the mother, and Maternity HES records mother's ethnic category, 87 per cent of the linked records had the same ethnic group.CONCLUSION: Even though a good linkage rate was obtained, the method used will be simplified before data for 2007 are linked. To gain the maximum benefit from this linkage in future years, improvements are urgently needed in the quality and completeness of the data contained in Maternity HES.List of Tables, 55.