Subjective burden among spousal and adult-child informal caregivers of older adults: results from a longitudinal cohort study
Subjective burden among spousal and adult-child informal caregivers of older adults: results from a longitudinal cohort study
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DOI：
10.1186/s12877-016-0387-y
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发表时间：
2016-12-07
期刊：
影响因子：
4.1
通讯作者：
Smidt, Nynke
中科院分区：
文献类型：
--
作者：
Oldenkamp, Marloes;Hagedoorn, Mariet;Smidt, Nynke
背景资料：由于预期寿命和保健费用的增加，非正规照料者的压力可能会增加，这就强调了防止主观负担的重要性。本研究探讨了荷兰老年人的配偶和成人-儿童照顾者之间的整体主观负担和多重负担维度的相关性，包括横截面和纵向（12个月随访）。方法：在2010年和2011年的基线和随访数据收集在一个样本的非正式照顾者和护理对象在荷兰的北方省。主观负担包括7个负担维度和基于护理相关生活质量量表（CarerQoL-7 D）的总体主观负担汇总评分。客观压力源是在护理方面的时间投入（家庭护理、个人护理、实际护理的时间）和护理接受者的健康状况，包括多项运动、功能限制（Katz独立指数、基本日常生活活动（ADL）和工具性日常生活活动（IADL））和认知功能问题（EQ-5D + C）。主观负担的相关因素进行了评估与线性和logistic回归analysis.Results：样本包括356照顾者在基线（43%的配偶，57%的成人-儿童照顾者），和158照顾者在后续（45%的配偶，55%的成人-儿童照顾者）。在基线和随访时，与成人-儿童照顾者相比，配偶照顾者经历了更高的整体主观负担，并报告了更常见的心理健康问题，身体健康问题和日常活动结合问题。对于配偶照顾者，照顾对象的健康状况较差与较高的主观负担相关，而成人-儿童照顾者报告的主观负担水平较高时，他们的时间投资在抚养高。在后续的主观负担主要是解释基线主观burners.Conclusions：这些结果表明，有效的照顾者的支持，这是至关重要的照顾关系的类型考虑，因为水平和相关的整体主观负担和负担尺寸不同的配偶和成人-儿童照顾者。此外，随着时间的推移，减少主观负担也会对主观负担产生积极影响。
Background: Pressures on informal caregivers are likely to increase due to increasing life expectancy and health care costs, which stresses the importance of prevention of subjective burden. The present study examined the correlates of overall subjective burden and multiple burden dimensions among spousal and adult-child caregivers of Dutch older adults, both cross-sectional and longitudinal (12-months follow-up).Methods: In 2010 and 2011 baseline and follow-up data was collected in a sample of informal caregivers and care recipients in the Northern provinces of the Netherlands. Subjective burden included 7 burden dimensions and a summary score for overall subjective burden, based on the Care-Related Quality of Life Instrument (CarerQoL-7D). Objective stressors were the time investment in caregiving (hours of household care, personal care, practical care) and the health situation of the care recipient, including multimorbidity, functional limitations (Katz Index of Independence Basic Activities of Daily Living (ADL) and Instrumental Activities of Daily Living (IADL), and cognitive functioning problems (EQ-5D + C). Correlates of subjective burden were evaluated with linear and logistic regression analyses.Results: The sample consisted of 356 caregivers at baseline (43% spousal, 57% adult-child caregivers), and 158 caregivers at follow-up (45% spousal, 55% adult-child caregivers). At baseline and follow-up, spousal caregivers experienced a higher overall subjective burden, and reported more often mental health problems, physical health problems, and problems with combining daily activities, compared to adult-child caregivers. For spousal caregivers, a poorer health situation of the care recipient was associated with higher subjective burden, while adult-child caregivers reported higher levels of subjective burden when their time investment in caregiving was high. Subjective burden at follow-up was mainly explained by baseline subjective burden.Conclusions: These results indicate that for effective caregiver support, it is crucial to take the type of care relationship into account, since the level and correlates of overall subjective burden and burden dimensions varied for spousal and adult-child caregivers. In addition, reducing subjective burden will also positively impact the subjective burden over time.