Providing early detection and early intervention for autism spectrum disorder in South Africa: stakeholder perspectives from the Western Cape province

Providing early detection and early intervention for autism spectrum disorder in South Africa: stakeholder perspectives from the Western Cape province
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DOI:
10.2989/17280583.2018.1525386
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发表时间:
2018-01-01
影响因子:
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通讯作者:
de Vries, Petrus J.
de Vries, Petrus J.
中科院分区:
其他
文献类型:
--
作者:
Franz, Lauren;Adewumi, Konyin;de Vries, Petrus J.

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我们着手研究南非自闭症谱系障碍(ASD)早期发现和干预的主要利益相关者的观点。早期发现和干预可以改善儿童和家庭的结果,并减少长期成本。我们专注于西开普省的利益相关者,这是医疗保健资源较好的省份之一。八个高级管理层的利益相关者,两个来自政府的卫生,教育和社会发展,以及非营利部门确定使用有目的的抽样。深入访谈的重点是与执行有关的关键主题。《国家幼儿综合发展政策》与早期发现和干预最相关。然而,这项政策并不是ASD特有的。这种缺乏特异性的情况与一个新出现的主题相一致:ASD仅在其他发育障碍的背景下被发现,特别是卫生和社会发展。具体的ASD早期检测和干预目前可能与卫生和社会发展部门的目标不一致。这些部门主要负责识别患有自闭症谱系障碍的幼儿并为其提供服务和经济支持。增加ASD知识和南非当地关于患病率、负担和相关费用的统计数据可能会改变这种方法。此时,自闭症谱系障碍的早期干预可能与教育部门的目标更加一致。
We set out to examine key stakeholder perspectives on early detection and intervention for autism spectrum disorder (ASD) in South Africa. Early detection and intervention improves child and family outcomes and lessens long-term costs. We focused on stakeholders in the Western Cape province, one of the better-resourced in terms of healthcare. Eight senior management level stakeholders, two each from government's Health, Education, and Social Development, and the non-profit sector were identified using purposive sampling. In-depth interviews focused on key implementation-related themes. The National Integrated Early Childhood Development Policy was the most relevant to early detection and intervention. This policy, however, is not ASD specific. This lack of specificity is in keeping with an emerging theme: ASD was only seen within the context of other developmental disabilities, particularly by Health and Social Development. Specific ASD early detection and intervention may not currently align with Health and Social Development departmental goals. These departments are primarily responsible for identifying and providing services and financial support to young children with ASD. Increased ASD knowledge and local South African statistics on prevalence, burden and associated costs may alter this approach. At this time, ASD early intervention may be more closely aligned with Education department goals.