Psychometric evaluation of the Cystic Fibrosis Questionnaire-Revised in a national sample
Psychometric evaluation of the Cystic Fibrosis Questionnaire-Revised in a national sample
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DOI：
10.1007/s11136-011-0036-z
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发表时间：
2012-09-01
影响因子：
3.5
通讯作者：
Konstan, Michael W.
中科院分区：
文献类型：
--
作者：
Quittner, Alexandra L.;Sawicki, Gregory S.;Konstan, Michael W.
目的的心理测量特性的健康相关的生活质量（HRQOL）的工具，囊性纤维化的修订版（CFQ-R），在全国样本的囊性纤维化（CF）患者进行了评估。方法CF的流行病学研究是一个国家，多中心，纵向队列研究，包含CFQ-R和健康结果的数据。从7,330名6-70岁的患者和2,728名学龄儿童的父母那里获得了适合发展的CFQ-R版本。CFQ-R是在“稳定”或“生病”的访问记录健康结果，如体重，肺功能，肺acquisitions.Results之前完成的，有几个地板和天花板的影响和强大的内部一致性（Cronbach α>= 0.70）的大多数规模。CFQ-R始终区分患者的患病与健康访视，以及基于肺功能的疾病严重程度阶段。正如预测的那样，CF女性报告的HRQOL比男性更差，与身体形象和体重无关。强烈的亲子协议被发现测量可观察到的行为（呼吸道症状）的规模。CFQ-R量表和健康outcomes之间的收敛提供了证据的结构validity.Conclusions的CFQ-R表现出强大的心理测量特性和一致的关联，在一个大的国家样本的健康结果。
Purpose The psychometric properties of a health-related quality of life (HRQOL) instrument, the Cystic Fibrosis Questionnaire-Revised (CFQ-R), were evaluated in a national sample of patients with cystic fibrosis (CF).Methods The Epidemiologic Study of CF is a national, multicenter, longitudinal cohort study containing CFQ-R and health outcomes data. Developmentally appropriate versions of the CFQ-R were available from 7,330 patients aged 6-70 years and a proxy version from 2,728 parents of school-age children. The CFQ-R was completed during a "stable" or "sick" visit before recording health outcomes such as weight, lung function, and pulmonary exacerbations.Results There were few floor and ceiling effects and strong internal consistency (Cronbach alpha >= 0.70) for most scales. The CFQ-R consistently discriminated between patients seen for sick-versus-well visits, and among stages of disease severity based on lung function. As predicted, women with CF reported worse HRQOL than men on scales not related to body image and weight. Strong parent-child agreement was found on scales measuring observable behaviors (respiratory symptoms). Convergence between CFQ-R scales and health outcomes provided evidence of construct validity.Conclusions The CFQ-R demonstrated robust psychometric properties and consistent associations with health outcomes in a large national sample.