Previvorship Posting: Why Breast Cancer Previvors Share Their Stories on Social Media.
Previvorship Posting: Why Breast Cancer Previvors Share Their Stories on Social Media.
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幸存者发帖：为什么乳腺癌幸存者在社交媒体上分享他们的故事。
DOI：
10.1080/10410236.2022.2074780
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发表时间：
2023
影响因子：
3.9
通讯作者：
Kaphingst,KimberlyA
中科院分区：
文献类型：
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作者：
Wellman,MariahL;Holton,AveryE;Kaphingst,KimberlyA
对先证者的研究，即具有遗传性乳腺癌和卵巢癌易感性，但尚未被诊断为乳腺癌或其他癌症的个人，研究在线信息收集和社区支持，以减少不确定性。然而，探索由前任自己发布的在线内容的研究是有限的。我们查看了发布在Instagram和TikTok上的内容，以探索乳腺癌患者如何讨论他们的生活经历，包括但不限于，基因测试、BRCA1/2致病(即风险增加)变异的诊断、接受手术和/或重建等预防措施的决定，以及他们在诊断和手术后如何应对。在研究结果中，我们解释了有多少前任感到有责任在社交媒体上分享他们真实的经历，以帮助他人并减轻自己的不确定感。这项研究提供了一个快照，说明女性是如何在网上分享患乳腺癌的经历和建立社交关系的。
Research on previvors, individuals with a genetic predisposition to develop hereditary breast and ovarian cancer but who have not yet been diagnosed with breast or other cancers, examines online information gathering and community support to alleviate uncertainty. However, research exploring online content published by previvors themselves is limited. We examined content published to Instagram and TikTok to explore how breast cancer previvors discussed their lived experience which included, but was not limited to, genetic testing, diagnosis with aBRCA1/2pathogenic (i.e. risk-increasing) variant, the decision to undergo preventative measures like surgery and/or reconstruction, and how they cope after diagnosis and surgical procedures. In the findings, we explicate how many previvors feel a responsibility to share their authentic experience on social media in order to help others and mitigate their own feelings of uncertainty. This study offers a snapshot of how women are sharing breast cancer previvorship and building social connections with each other online.