Unique role of rheumatology in establishing collaborative relationships in research. Past, present and future of patient engagement
Unique role of rheumatology in establishing collaborative relationships in research. Past, present and future of patient engagement
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DOI：
10.1136/annrheumdis-2018-214387
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发表时间：
2019-03-01
影响因子：
27.4
通讯作者：
Adebajo, Adewale
中科院分区：
文献类型：
--
作者：
de Wit, Maarten;Adebajo, Adewale
风湿科的专业是照顾患有残疾和长期肌肉骨骼疾病的人。对于这些患者来说，良好的医疗保健需要与医疗保健专业人员建立可持续的合作伙伴关系。二十多年来，风湿病学一直是在科学研究中试点和实施新型合作伙伴关系的领跑者。在这篇观点论文中，我们提供了风湿学在制定战略以吸引患者参与研究议程设置、结果研究、制定治疗建议、评估拨款申请、进行以患者为中心的研究以及将知识从研究转化为实践方面发挥主导作用的证据。风湿学方面的经验和教训定期出版，目前在其他专业和研究背景下被广泛改编和实施。挑战仍然存在，预计风湿学作为该领域的领先学科，可能会进一步提高我们对关系赋权和有意义的患者参与的条件的知识、专业知识和理解。
The specialty of rheumatology takes care of people with disabling and long-term musculoskeletal conditions. For these patients, good healthcare requires the establishment of a sustainable partnership with healthcare professionals. For over two decades, rheumatology has been a frontrunner in piloting and implementing new kinds of partnerships in scientific research. In this viewpoint paper, we provide evidence for the leading role of rheumatology in developing strategies for engaging patients in research agenda setting, outcome research, developing treatment recommendations, assessing grant applications, conducting patient-centred research and transferring knowledge from research into practice. Experiences and lessons learnt in rheumatology are regularly published and are currently widely adapted and implemented in other specialties and research contexts. Challenges still exist and it is expected that rheumatology, as a leading discipline in this field, may further enhance our knowledge, expertise and understanding of the conditions for relational empowerment and meaningful patient involvement.