The Questionnaire of Young People's Participation (QYPP): a new measure of participation frequency for disabled young people.
The Questionnaire of Young People's Participation (QYPP): a new measure of participation frequency for disabled young people.
复制标题
青少年参与问卷（QYPP）：残疾青少年参与频率的新衡量标准。
DOI：
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发表时间：
2013
期刊：
影响因子：
--
通讯作者：
A. Colver
中科院分区：
文献类型：
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作者：
C. Tuffrey;Belinda Bateman;A. Colver
介绍
参与的概念是世界卫生组织在2001年《国际功能、残疾和健康分类》中提出的。为儿童和成人制定了衡量参与情况的工具，但没有专门针对青少年的工具。青少年是一个具有不同参与模式的生命阶段，先前的研究表明，残疾青年的参与程度低于一般人口。本研究的目的是为脑瘫（CP）的年轻人制定一个涵盖所有主要领域的参与频率的衡量标准。选择CP作为范例是因为它是年轻人残疾的一个重要原因，受影响的个人经历了一系列不同严重程度的不同损伤。
方法
利用已发表的文献、现有措施和青年人的定性数据，编制了一个88个项目的汇总表。经17名专家审查后，对项目库进行了修订。认知访谈的项目进行了12个年轻人和12个照顾者，现场测试，然后进行了107个年轻人与CP年龄在13-21岁，和540名年轻人从一般人群中，使项目减少，并检查可靠性和结构效度。
结果
内容审查产生了92个条目的问卷草案，内容效度指数为93%。认知访谈导致进一步的措辞变化。经过实地测试后，问卷缩短为45个项目。已知组的有效性与损害严重程度的相关性。重测信度是令人满意的所有领域。内部一致性因领域而异。
结论
这是专门为衡量残疾青年在多个领域的参与频率而开发的第一个工具。在研究和临床工作中使用问卷将使其属性得到更好的理解，其推广到更广泛的群体更清楚。
INTRODUCTION
The concept of participation was introduced by the World Health Organisation in the International Classification of Functioning, Disability and Health, 2001. Instruments to measure participation have been developed for children and adults, but none specifically for adolescents. Adolescence is a life stage with distinct patterns of participation, and previous research has shown that young people with disabilities have poorer participation than the general population. The aim of this study was to develop a measure of participation frequency, covering all major domains, for young people with cerebral palsy (CP). CP was chosen as an exemplar because it is a significant cause of disability in young people, with affected individuals experiencing a range of different impairments of varying severity.
METHODS
A pool of 88 items was developed using the published literature, existing measures and qualitative data from young people. The item pool was revised following expert review by 17 experts. Cognitive interviews on the items were carried out with 12 young people and 12 carers; field-testing was then undertaken with 107 young people with CP aged 13-21 years, and 540 young people from the general population to enable item reduction and to examine reliability and construct validity.
RESULTS
The content review resulted in a 92-item draft questionnaire, content validity index of 93%. Cognitive interviews led to further wording changes. Following field-testing, the questionnaire was shortened to 45 items. Known-groups validity was demonstrated by correlation with impairment severity. Test-retest reliability was satisfactory for all domains. Internal consistency varied between domains.
CONCLUSION
This is the first instrument developed specifically to measure frequency of participation across multiple domains for young people with disability. Use of the questionnaire in research and clinical work will enable its properties to be better understood and its generalizability to wider groups to be clearer.
影响因子：
0.7
作者：
Fleury,J
通讯作者：
Fleury,J